{
  "abstract": "Introduction To support the development of the National Trauma Research Repository (NTRR), a multidisciplinary workgroup used a consensus-driven approach to review established social determinants of health data elements and recommend trauma common data elements (CDEs) for inclusion in the NTRR data dictionary.Methods A 13-member workgroup of military and civilian trauma researchers and data scientists located and reviewed databases, codebooks, screening toolkits, and published articles for data elements relevant to social determinants of health. Identified data elements were reviewed in a three-round Delphi survey and monthly meetings with the workgroup were conducted. Consensus during the Delphi survey was identified with an 80% agreement threshold.Results 18 sources were reviewed for data elements relevant to social determinants of health. After the three-round Delphi and post-Delphi workgroup discussions, 29 (42%) data elements, 11 (73%) toolkits, and two (67%) medical terminologies reached consensus for inclusion.Discussion The resulting standardized CDEs will improve data harmonization and support consistent data collection in the NTRR. These CDEs represent an initial framework and serve as a foundational starting point for social determinants of health data collection within the NTRR. As researchers use the NTRR, the list of CDEs will grow and evolve with the needs of the trauma research community.Level of evidence Level VII.",
  "authors": [
    {
      "affiliations": [
        "Data Collaboration Center, Critical Path Institute, Tucson, Arizona, USA",
        "Discovery, Society of Critical Care Medicine, Mount Prospect, Illinois, USA"
      ],
      "name": "Smith F Heavner"
    },
    {
      "affiliations": [
        "Coalition for National Trauma Research, San Antonio, Texas, USA"
      ],
      "name": "Nicolas W Medrano"
    },
    {
      "affiliations": [
        "Surgery, North Memorial Health, Minneapolis, Minnesota, USA"
      ],
      "name": "Michaela A West"
    },
    {
      "affiliations": [
        "Center for Surgery and Public Health, Brigham and Women’s Hospital, Boston, Massachusetts, USA"
      ],
      "name": "Juan Pablo Herrera-Escobar"
    },
    {
      "affiliations": [
        "Neurology and Neurosurgery, Medical College of Wisconsin, Milwaukee, Wisconsin, USA"
      ],
      "name": "Lindsay D Nelson"
    },
    {
      "affiliations": [
        "Family and Community Medicine, University of Arizona Medical Center - University Campus, Tucson, Arizona, USA"
      ],
      "name": "Karen Lutrick"
    },
    {
      "affiliations": [
        "Surgery, Medical College of Wisconsin, Milwaukee, Wisconsin, USA"
      ],
      "name": "Terri deRoon-Cassini"
    },
    {
      "affiliations": [
        "Department of General Internal Medicine, Johns Hopkins Medicine, Baltimore, Maryland, USA"
      ],
      "name": "Xiaohan Tanner Zhang"
    },
    {
      "affiliations": [
        "Trauma, Surgical Care, Burns & Acute Care Surgery, University of Arizona Medical Center - University Campus, Tucson, Arizona, USA"
      ],
      "name": "Christina Colosimo"
    },
    {
      "affiliations": [
        "EMS and Injury Prevention Branch, State of Hawaii, Honolulu, Hawaii, USA"
      ],
      "name": "Garrett Dennis Hall"
    },
    {
      "affiliations": [
        "Population Health and Health Disparities, The University of Texas Medical Branch at Galveston, Galveston, Texas, USA"
      ],
      "name": "Monique Pappadis"
    },
    {
      "affiliations": [
        "Center for Clinical Epidemiology and Population Health, Marshfield Clinic Research Institute, Marshfield, Wisconsin, USA"
      ],
      "name": "Heather X Rhodes-Lyons"
    },
    {
      "affiliations": [
        "External Transfer Center, Northwestern Medicine, Chicago, Illinois, USA"
      ],
      "name": "Casey Green"
    },
    {
      "affiliations": [],
      "name": "The NTRR Investigator Group"
    }
  ],
  "title": "Adopting common data elements (CDEs) for the National Trauma Research Repository (NTRR): the results of a social determinants of health Delphi survey",
  "uid": "1c486da9-1583-5f48-a22b-50c936a55466"
}