{
  "abstract": "Introduction The European Network on Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET) is formed by groups of healthcare professionals and patients that cooperate to improve the management on rare (Ehlers-Danlos Syndromes, IgG4-Related Diseases, Mixed Connective Tissue Disease (MCTD), Relapsing Polychondritis) and complex CTDs (Antiphospholipid Syndrome, Idiopathic Inflammatory Myopathies, Sjögren’s Syndrome, Systemic Lupus Erythematosus, Systemic Sclerosis (SSc), and Undifferentiated Connective Tissue Disease)Since 2019, ReCONNET Educational Committee organized free online webinars accessible live on Zoom platform and recorded on ReCONNET YouTube (YT) page. The aim of the current analysis was to assess the number of live and YT views (YTv) for the webinars from SSc disease group compared with other CTDs.Material and Methods Since 2019, ERN ReCONNET organized 79 webinars. Live views data (available since October 2023) were obtained from Zoom, while YTv (available since 2019) were collected as of 31st August 2025.Results By considering a total of 167,000 YTv, 21 webinars on rare CTDs collected 76,908 YTv (average 3,623±4,484 per webinar), whereas 58 webinars on complex CTDs totalized 90,902 YTv (average of 1,567±1,971 per webinar), the former got a significantly higher number of YTv per webinar (p<0.01).To date, 7 webinars have been specifically dedicated to SSc, which YTv (average 844.4±758.5; total 5,911) showed no significant differences in audience engagement when compared with other CTDs (p>0.05), except for MCTD (average 7,578.7 ± 6,824.6; total 22,736; p=0.01) (figure 1).Since October 2023, SSc webinars collected 50 live views (3 webinars, average 12.5±11.47 per webinar). For live webinars, no significant differences in maximum concurrent attendance were observed between SSc-dedicated sessions and those focused on other CTDs (all p>0.05), nor when SSc webinars were compared with all other groups combined (p=0.229) (figure 2).Over time, SSc YTv demonstrated a significant increase versus other CTDs, with an average growth of 21 views per time unit (β=21.07, p=0.001), but the latter started with higher initial views β=235.33, p=0.001) and a significantly steeper increase in views compared to SSc (β=29.51, p=0.001) (figure 3).Conclusions By considering the high competition on term of online Education for CTDs, the SSc educational webinars from ERN ReCONNET, generated a level of interest comparable to the other CTDs, but showed a more significant increase in YTv over time, although the growth of the other CTDs seemed faster. The analysis highlights the very positive feedback on continuous education offered by the free online availability for webinars for HCPs, patients, and caregivers.Abstract P.389 Figure 1Distribution of YouTube recordings views across connective tissue diseases (CTDs). Boxplots display the median, interquartile range, and outliers. Abbreviations: SSc: Systemic scierosis; MCTD: Mixed connective tissue disease; EDS: Ehlers-Danios syndromes; SLE: Systemic lupus erymematosus: UCTD: Undifferentiated connective tissue disease; IM: kslopathic Inflammatory myopathies; SS: Sjogren’s syndrome; RP: Relapsing polychondritis; APS: Antiphospholipid syndrome; igG4-RD: IgG4-related diseasesAbstract P.389 Figure 2Distribution of zoom live Wv across CTDs. Boxplots display the median, interquartile range, and eutliers. Abbreviations: SSc: systemic sclerosis; MCTD: mixed connective tissue disease; EDS: ehlers-danlos syndromes; SLE: systemic lupus erythematosus; UCTD: undmerentated connective tissue disease; IIM: idiopathie inflammatory myopathies; SS: sjogren’s syndrome; RP: relapsing polychondritis; APS: antiphosphollpid syndrome: IgG4-RD: IgG4-related diseasesAbstract P.389 Figure 3YouTube vews over fime for SSc compared wth offer CTDs (ene-year vleuns). Scater glots uith fited sgession lnes (red = S5c, blue » Ofer CTDs) Mustrate view tajectore acress fimepoints. Linear regression with an intoraction rm (lme group) was applied to asses baseline diferences and growth rates. For SSc, vlews incrased significanty over me B:21.07 p-0 001) Compared wth 5Sc, the other CTDs group showed signifcantty higher baselline view. (-235.33, p-0.001) and a significantly sbeeper gronth rae (B=29.51, p=0.001). Ragressior coefficients are repoited wih robust HC3 standard ecrors. Figuse creaded wth R sotware",
  "authors": [
    {
      "affiliations": [
        "Department of Internal Medicine and Specialties, University of Genova, Genova, Italy",
        "IRCCS Ospedale Policlinico San Martino, Genova, Italy"
      ],
      "name": "Emanuele Gotelli"
    },
    {
      "affiliations": [
        "Department of Internal Medicine and Specialties, University of Genova, Genova, Italy",
        "Department of Experimental Medicine, University of Genova, Genova, Italy"
      ],
      "name": "Rosanna Campitiello"
    },
    {
      "affiliations": [
        "Universite de Lille, Institute for Translational Research in Inflammation, Lille, France",
        "INSERM, Lille, France",
        "CHU Lille, Lille, France"
      ],
      "name": "Eric Hachulla"
    },
    {
      "affiliations": [
        "Department of Internal Medicine, University of Ghent, Ghent University Hospital, Ghent, Belgium",
        "Department of Rheumatology, University of Ghent, Ghent University Hospital, Ghent, Belgium",
        "Unit for Molecular Immunology and Inflammation, Flemish Institute for Biotechnology, Inflammation Research Center, Ghent, Belgium"
      ],
      "name": "Vanessa Smith"
    },
    {
      "affiliations": [
        "Unit of Immunology, Rheumatology, Allergy and Rare Diseases, IRCCS San Raffaele Hospital, Milano, Italy"
      ],
      "name": "Marco Matucci Cerinic"
    },
    {
      "affiliations": [
        "GILS, Gruppo Italiano per la Lotta alla Sclerodermia, Milano, Italy",
        "Federation of European Scleroderma Associations, FESCA, Saint Maur, Belgium"
      ],
      "name": "Ilaria Galetti"
    },
    {
      "affiliations": [
        "Federation of European Scleroderma Associations, FESCA, Saint Maur, Belgium",
        "Scleroderma and Raynaud United Kingdom, SRUK, London, UK"
      ],
      "name": "Sue Farrington"
    },
    {
      "affiliations": [
        "CHU Bordeaux Pellegrin, Centre de References Maladies Auto-Immunes Systemiques Rares, Bordeaux, France"
      ],
      "name": "Wiebke Lautre"
    },
    {
      "affiliations": [
        "Azienda Ospedaliero Universitaria Pisana, Pisa, Italy"
      ],
      "name": "Monica Testoni"
    },
    {
      "affiliations": [
        "Azienda Ospedaliero Universitaria Pisana, Pisa, Italy"
      ],
      "name": "Diana Marinello"
    },
    {
      "affiliations": [
        "Azienda Ospedaliero Universitaria Pisana, Pisa, Italy"
      ],
      "name": "Rosaria Talarico"
    },
    {
      "affiliations": [
        "Azienda Ospedaliero Universitaria Pisana, Pisa, Italy"
      ],
      "name": "Marta Mosca"
    },
    {
      "affiliations": [
        "Department of Internal Medicine and Specialties, University of Genova, Genova, Italy",
        "IRCCS Ospedale Policlinico San Martino, Genova, Italy"
      ],
      "name": "Maurizio Cutolo"
    }
  ],
  "title": "P.389 Educational online webinars of European reference network (ERN) on rare and complex connective tissue and musculoskeletal diseases (reconnet): 6 years’ results of the systemic sclerosis disease group",
  "uid": "8e25af90-5fba-5e92-a7b2-31bb9693cfd6"
}