{
  "abstract": "Introduction In the United Kingdom, regional variations in care provision and outcomes for patients with liver disease have been repeatedly highlighted. Whilst initiatives, such as Improving Quality in Liver services, as well as care bundles have been developed to address variation, there is currently no standardised patient-reported experience tool for outpatient services. This presents a challenge when comparing service provision. We aimed to develop a patient-reported experience survey (PRES) and undertake a feasibility study to understand the challenges in delivering it in the outpatient setting.Methods A PRES working group was developed with healthcare professionals (HCP) from specialist and non-specialist centres, trainee, allied health professional and patient charity representatives. A survey was developed utilising existing literature. Patient feedback was provided from the British Liver Trust and HCP feedback was provided from the British Society of Gastroenterology Liver Section and Quality Standards working group. The PRES was then trialled for one month at Leeds Teaching Hospitals (LTH), University Hospitals Dorset (UHD) and Gateshead Health NHS Foundation Trust (GH). Projected margin of error was calculated with a target of <10% to demonstrate adequate power.Results 122/1182 surveys were completed (65/848 LTH, 27/146 UHD, 30/188 GH). Margin of error for the entire sample was 8.4% meaning commonalities across sites were likely true. However, individual site margin of error was greater than 10% (LTH 11.7%, UHD 17.1%, GH 16.5%) which prevented comparison between sites. Most PRES responses were online with 22.1% completed through written format. Responses were predominately from patients with face-to-face appointments with 12.3% of respondents from telephone appointments. Appointments were mostly with Consultants (61.5%) although a broad range of HCPs were represented. 9.8% of respondents saw an HCP that they were not expecting to see.Most respondents were happy with their overall care. All patients felt like they were treated with respect and knew why they were being seen and why tests were taken. 1.6% were unsure if they were involved with decisions around their care. 6.6% did not know how to raise questions following the appointment. 9.0% were dissatisfied with frequency of appointments. Free-text comments highlighted the challenges in seeing their team frequently enough (particularly face-to-face appointments) and with communication of appointments and tests.Conclusions We have developed a PRES which can be utilised to understand patient experience of outpatient encounters. Further work is required to improve engagement with surveys to allow for this tool to be used to benchmark services.",
  "authors": [
    {
      "affiliations": [
        "Leeds Liver Unit, UK"
      ],
      "name": "Oliver Tavabie"
    },
    {
      "affiliations": [
        "Northumbria Healthcare NHS Foundation Trust, UK"
      ],
      "name": "Amy Johnson"
    },
    {
      "affiliations": [
        "University Hospitals Birmingham NHS Foundation Trust, UK"
      ],
      "name": "Felicity Williams"
    },
    {
      "affiliations": [
        "British Liver Trust, UK"
      ],
      "name": "Vanessa Hebditch"
    },
    {
      "affiliations": [
        "University Hospitals Dorset NHS Foundation Trust, UK"
      ],
      "name": "Safa Al-Shamma"
    },
    {
      "affiliations": [
        "Gateshead Health NHS Foundation Trust,UK"
      ],
      "name": "Dina Mansour"
    }
  ],
  "title": "P111 Development and feasibility of a patient-reported experience survey for outpatients with liver disease",
  "uid": "e4968734-4972-56c7-b653-c32ecf582173"
}