{
  "abstract": "Introduction Alcohol-related liver disease (ARLD) is the leading cause of liver-related illness and death in the UK, with a forty-six percent rise in deaths since 2012 and over 10,000 deaths annually. Addressing barriers to early presentation and treatment is crucial. A multidisciplinary team from the British Association for the Study of the Liver and the British Society of Gastroenterology has developed 24 quality standard recommendations for ARLD care. This study focuses on one: ensuring patients receive clear, written information about their liver disease before discharge. We conducted a survey to assess how well this quality standard is met.Methods A qualitative, prospective, cross-sectional study in people with ARLD using a structured survey and cognitive testing through a mini-mental state examination and a timed number connection test. The survey collected data on basic demographics, prior knowledge on ARLD, how and when patients were approached with new information on ARLD and perceived usefulness of current information (rated one to ten), preferred mode of learning about their condition, general learning preferences and accessibility needs. We collected general feedback on how informed patients felt and their overall experience of care during their admission.Results Twelve participants were included. Participants were middle aged (median age 50, range 50–60) and 60% were male. Most participants had been admitted to hospital more than once with ARLD (median admissions 3). The perceptions of prior knowledge about ARLD varied widely (range 2 – 10) with most reporting that information about their condition was acquired through external resources, most notably alcohol rehabilitation services. Information about ARLD was typically received at admission or during in-patient stay and was rated moderately useful (mean score of seven out of ten). The preferred mode of receiving ARLD-related information was by post which aligns with the finding that reading material was the most preferred general learning style.Conclusion Our main finding through this study was that the support and education for patients was inadequate and inconsistent, with most support being derived from external resources. The continuous follow up from Alcohol services is something that was praised often and highlighted the importance of timing and format of information given. Our study demonstrates the need for more effective and long-lasting communication with patients with ARLD through.",
  "authors": [
    {
      "affiliations": [
        "University Of Leeds, UK"
      ],
      "name": "Sienna Sekhon"
    },
    {
      "affiliations": [
        "University Of Leeds, UK"
      ],
      "name": "Mahi Iquram-Zia"
    },
    {
      "affiliations": [
        "Leeds Teaching Hospitals Trust, Leeds, UK"
      ],
      "name": "Lucy Turner"
    },
    {
      "affiliations": [
        "Leeds Teaching Hospitals Trust, Leeds, UK"
      ],
      "name": "Richard Parker"
    }
  ],
  "title": "P23 Patient-centred communication in alcohol-related liver disease: identifying preferred information delivery methods and barriers to effective education",
  "uid": "507365dc-62bd-5046-b136-7b6b73dd11df"
}