{
  "abstract": "Background An increasing attention to the quality of paediatric endoscopic services, led to the development of paediatric specific endoscopy quality standards in the joint NASPGHAN and ESPGHAN guidelines. Two quality standards emphasise the importance of providing accurate, accessible information to patients and their families to facilitate informed consent and promote patient centred care.Our primary objective was to create up-to-date information leaflets on gastrointestinal endoscopic procedures, with the aim of improving understanding of the procedures’ intended benefits and risks. Ultimately, we sought to develop leaflets that could serve as model for all paediatric endoscopy centres.Methods This work was conducted following a user-centred design approach. Existing leaflets from Sheffield’s Children’s NHS Foundation Trust were reviewed and updated in line with current evidence and guidelines, while new ones were created where needed. The revised materials were proofread and refined through iterative review by the paediatric gastroenterology team, including doctors, specialist and endoscopy nurses.The finalised relevant information leaflets were distributed to children and their families on the day of their endoscopic procedure. Participants completed a standardised questionnaire assessing their baseline knowledge of the procedure. Responses were recorded on a five-point Likert scale (‘Strongly disagree’ to ‘Strongly agree’). After receiving the relevant leaflet, participants completed the same questionnaire to evaluate any change in understanding. Improvement was defined as an increase of at least one point on the Likert scale.Results 15 patients answered the questionnaires. Of these, 40% underwent a gastroscopy, 20% underwent a colonoscopy, 20% had a gastroscopy associated to a pH study, 7% had a polypectomy, a percutaneous endoscopic gastrostomy or a change of Corflo PEG to a balloon button PEG. Nearly half of the questionnaires were answered by parents, 20% were filled in by the child only, and one third by both.The table 1 shows improvements in understanding after having read the information leaflet. The greatest improvement was observed in knowing what to expect after the procedure. Over half of respondents showed increased understanding of what an endoscopy is, how the procedure is performed, the main risks, and why and how to have a bowel preparation. In contrast, fewer children reported feeling more prepared for the procedure, while 45% of parents felt more confident explaining it to their child.Conclusion The leaflets significantly enhanced understanding among patients and families. This improvement was observed among patients and parents who had already received verbal explanations about the procedure and had provided informed consent. This highlights the value of written educational resources in reinforcing comprehension and supporting informed decision-making.Abstract OC87 Table 1Understanding improvement for each assessed questionQuestionsImprovement ≥1 point increase, %I know what an endoscopy is47I know how the procedure is performed53I know why and how I/my child needs a bowel preparation for colonoscopy50I know the main risks of the procedure53I know what to expect after the procedure67I feel prepared for the procedure14I feel more confident explaining the procedure to my child/young person45",
  "authors": [
    {
      "affiliations": [
        "Sheffield Children’s NHS Foundation Trust"
      ],
      "name": "Anna Zervos"
    },
    {
      "affiliations": [
        "Sheffield Children’s NHS Foundation Trust"
      ],
      "name": "Dominique Schluckebier"
    },
    {
      "affiliations": [
        "Sheffield Children’s NHS Foundation Trust"
      ],
      "name": "Priya Narula"
    }
  ],
  "title": "OC87 Patient information leaflets – gastroenterology endoscopic procedures in children. designing patient information leaflets for paediatric endoscopy: a user-centred approach",
  "uid": "df3131bf-099a-5b73-8c6f-b26107961633"
}