{
  "abstract": "The increasing incidence of Inflammatory Bowel Disease (IBD) in adolescents translates into an increasing cohort requiring healthcare transition. Between 2021-2022 12.5 per 100,000 in the UK were diagnosed with IBD. 2 Disease specific education is recognised and recommended as an important pillar of delivering developmentally appropriate healthcare (DAH) and effective transition.1To improve cohort knowledge age-specific information leaflets were developed for patients aged 14, 15 and 16+, each contained materials scaled for developmental appropriateness. These were distributed to YP’s diagnosed with IBD who were involved with the transition process. The document included QR codes linking to additional online resources from Crohn’s and Colitis UK, such as smoking, alcohol, sexual health and healthy lifestyle. In line with national guidance for young people to be involved in their transition process.3 they were involved in reviewing these leaflets to gauge the YP understanding of their disease, adolescent health and the transition process.To assess effectiveness of the information leaflets and measure the change in understanding, an anonymous questionnaire was designed, which measured 13 key metrics related to IBD knowledge, adolescent health and healthcare transition, using Likert style format (coded as 1-5). Questionnaires were distributed pre, then post receipt of reading the supplied information to assess the impact on baseline knowledge and understanding.25 completed responses were received. Overall, there was an improvement in the coded score across each question (figure 1), data was aggregated as age linkage was not available at the time of analysis. Varying levels of improvement were noted in each question. The mean coded total score at baseline was 93.8, with the post leaflet response being totalled at 106.8, denoting a 13-point (14%) increase.The lowest baseline scores were observed for Q12 (74), Q9 (75) and Q3 (79), while the highest pre-intervention scores were noted for Q10 (110), Q5 (107), Q1 (106). The greatest improvements in scores were seen for Q7 (+29), Q3 (+27) and Q9 (+22), These items had lower baseline scores compared with others, contributing to the greater observed change. In contrast, less significant changes were seen in questions that already had relatively high baseline scores Q10 (+3), Q1 (+5) and Q13 (+5), each had above average baseline scores, consistent with ceiling effects.This study demonstrated that the information leaflets positively influenced young people’s knowledge of IBD, adolescent health, and healthcare transition. Baseline responses identified areas requiring additional support. Future research exploring young people’s views on the content, design, and alternative formats for information delivery would be valuable.References Brooks AJ, Smith PJ, Cohen R, Collins P, Douds A, Forbes V, et al. UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care. Gut 2017;66:988–1000. [Abstract]Henderson P. Compounding prevalence: the continued rise in paediatric IBD – a worrying trend. European Crohn’s and Colitis Organisation 2024;19(4). [Article]National Institute for Health and Care Excellence (NICE). Transition from children’s to adults’ services for young people using health or social care services. [Internet]. London: NICE; 2016 Feb 24 [cited 2025 Oct 30]. Available from: https://www.nice.org.uk/guidance/ng43Abstract OC80 Figure 1",
  "authors": [
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Charlotte Hinchliffe"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Georgina Morrell"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Nicolas Del’Nero"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Akshay Kapoor"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Zuzana Londt"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Shishu Sharma"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Arun Urs"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Prithviraj Rao"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Dominique Schluckebier"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Mike Thomson"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Natalia Nedelkopoulou"
    },
    {
      "affiliations": [
        "Sheffield Children’s Hospital NHS FT"
      ],
      "name": "Priya Narula"
    }
  ],
  "title": "OC80 Usefulness of age-banded patient information leaflets to support healthcare transition for young people with inflammatory bowel disease",
  "uid": "901bb27e-3197-576c-9318-ef4027e4d27f"
}