{
  "abstract": "Transition from paediatric to adult healthcare is a critical phase for adolescents with chronic conditions, including inflammatory bowel disease (IBD). 1 2 Adolescents with IBD face unique challenges, including continuity disruptions, loss of established provider relationships, and increased responsibility for self-management.3 The Mind the Gap questionnaire assesses perceived quality of transitional care by comparing expectations of ‘best care’ with perceptions of ‘current care,’ highlighting areas for improvement.4 This service evaluation assessed perceptions of transitional care among adolescents with IBD and their parents, and identified domains for service enhancement.A retrospective, cross-sectional service evaluation was conducted at Sheffield Children’s Hospital. Adolescents aged 14–18 years with IBD who had not yet transferred to adult services, along with their parents or carers, were invited to complete the Mind the Gap questionnaire. The tool evaluates three domains: management of the environment, provider characteristics, and process of care. Gap scores range from −7 (most satisfied) to 7 (least satisfied). Descriptive statistics, Cronbach’s alpha, Friedman tests, and Mann–Whitney U tests were applied.Of 35 families invited, 25 adolescents (71.4%) and 35 parents (100%) completed the survey. Median adolescent age was 15.7 years (range 14–18), 68% male; parents were predominantly mothers (88%), median age 40.3 years. Adolescents reported moderate satisfaction, with no significant differences between the three domains (χ2(2) = 3.318, p = 0.190). Parents expressed greatest dissatisfaction with management of the environment (mean gap = 1.16, median = 1.0) and highest satisfaction with provider characteristics (mean = 0.41, median = 0.23; χ2(2) = 11.139, p = 0.004). No significant differences were observed between overall adolescent and parent gap scores. Internal consistency was high (total scale α = 0.883 for adolescents; α = 0.922 for parents).This first application of the Mind the Gap questionnaire in adolescents with IBD preparing for transition shows moderate satisfaction among adolescents, while parents highlighted environmental aspects as key areas for improvement. The findings support targeted interventions to optimise transitional care and better prepare adolescents for adult services. Future work should explore whether addressing these gaps improves long-term adherence, clinical outcomes, and patient satisfaction.References Campbell F, Biggs K, Aldiss SK, et al. Cochrane Database Syst Rev. 2016;4:CD009794.Seydel A. J Spec Pediatr Nurs. 2023;28:e12414.Wong LH, Chan FW, Wong FY, et al. J Adolesc Health 2010;47:540–546.Shaw KL, Southwood TR, McDonagh JE. British society of paediatric and adolescent rheumatology. Child Care Health Dev. 2007;33:380–388.",
  "authors": [
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Valeria Dipasquale"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Rhona Hubbard"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Charlotte Hinchliffe"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Ifeanyi Obiakalusi"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Ashwin Ravi"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Akshay Kapoor"
    },
    {
      "affiliations": [
        "Department of Paediatric Gastroenterology, Sheffield Children’s Hospital NHS FT and University of Sheffield, Sheffield, UK"
      ],
      "name": "Priya Narula"
    }
  ],
  "title": "OC110 Perceptions of transitional care in adolescents with inflammatory bowel disease: a service evaluation using the mind the gap questionnaire",
  "uid": "343c3701-de00-578b-810d-ebad0554b738"
}