{
  "abstract": "Objective Video capsule endoscopy (VCE) is a tool for investigation of the gastrointestinal tract and a non-invasive alternative to colonoscopy. Despite its increasing use, patient experience and acceptability of VCE remains under-examined. This qualitative study examined the experiential nature of undergoing this novel investigation, seeking potential areas for improvement.Methods Patients aged ≥18 years who had undergone VCE for any indication at two National Health Service sites were invited to participate in semi-structured telephone interviews which explored VCE experience from point of procedure booking to receipt of results. Recruitment continued until no new data emerged that challenged analysis (n=21). Thematic analysis was undertaken, with coded data organised initially as a sequential description of the procedural pathway, then into higher-order themes.Results Participants discussed their experiences of VCE, including undergoing patency tests, problems encountered in situating the capsule and experiences and expectations of passing the capsule. Three higher-order themes were developed: expectations and unknowns; perceptions of risk and comparison of VCE with other endoscopic procedures. Participants described a range of unmet information needs despite receiving written information, most notably: capsule appearance and size and experiential nature of swallowing it; capsule siting and potential additional procedures to achieve this and mechanisms and timelines for receiving results.Conclusions Patients are generally accepting of VCE but report a number of areas of unmet information needs. Improving information provision around this relatively new endoscopic procedure would improve patient experience. Procedure-specific patient reported experience measures should be developed to enable robust assessment of VCE experiences.",
  "authors": [
    {
      "affiliations": [
        "Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK"
      ],
      "name": "Christina Dobson"
    },
    {
      "affiliations": [
        "Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK"
      ],
      "name": "Emily Haworth"
    },
    {
      "affiliations": [
        "Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK"
      ],
      "name": "Linda Sharp"
    },
    {
      "affiliations": [
        "Gastroenterology, South Tyneside and Sunderland NHS Foundation Trust, South Shields, UK"
      ],
      "name": "Ingrid Emmerson"
    },
    {
      "affiliations": [
        "Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK",
        "School of Medicine and Population Health, University of Sheffield, Sheffield, UK"
      ],
      "name": "Reena Sidhu"
    },
    {
      "affiliations": [
        "Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Sheffield, UK"
      ],
      "name": "Victoria Thurston"
    },
    {
      "affiliations": [
        "Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK",
        "Gastroenterology, South Tyneside and Sunderland NHS Foundation Trust, South Shields, UK"
      ],
      "name": "Laura Jane Neilson"
    }
  ],
  "title": "“You don’t know what to expect”: unmet needs in patient experience of capsule endoscopy",
  "uid": "3d737cd7-da4b-5aa3-92be-3c7b0375502e"
}