{
  "abstract": "Abstract Developmental follow-up is a necessary part of neonatal care to identify additional support needs but also to allow national surveillance and research. Follow-up at 4 years of age enables assessment before school entry, allowing schools to be ready for and support children and their families. This is not currently routine across the UK despite the National Institute for Health and Care Excellence recommendations in 2017. This best practice guide was developed by the British Association for Neonatal Neurodevelopmental Follow-Up, a special interest group of the British Association of Perinatal Medicine.This framework supports clinicians developing and delivering a 4-year developmental follow-up service for children whose neonatal experiences put them at risk of developmental conditions or additional learning needs. This should include as a minimum those born before 28 weeks’ gestation and infants with moderate to severe neonatal encephalopathy. Infants with risk factors for developmental problems should also be considered.This framework recommends assessment of developmental domains including physical development and growth, cognitive development, emotional and behavioural development, sensory needs, speech, language and communication skills, social skills and relationships. A summary report should be shared with caregivers and key individuals in health, education and social care. This should describe the child’s strengths and needs to support transition into and throughout education.Specific service arrangements will vary depending on local resources and existing services. This framework provides guidance for clinical teams to enhance follow-up for children whose early experiences put them at risk of challenges, facilitating lifelong learning, participation and well-being.",
  "authors": [
    {
      "affiliations": [
        "Department of Child and Adolescent Psychiatry, Institute of Psychiatry, Psychology & Neuroscience, King’s College London, London, UK",
        "Department of Early Life Imaging, School of Biomedical Engineering & Imaging Sciences, King’s College London, London, UK",
        "Neonatal Intensive Care Unit, Simpsons Centre for Reproductive Health, Royal Infirmary Edinburgh, Edinburgh, UK"
      ],
      "name": "Katie Mckinnon"
    },
    {
      "affiliations": [
        "Neonatal Intensive Care Unit, King’s College Hospital NHS Foundation Trust, London, London, UK"
      ],
      "name": "Anusha Arasu"
    },
    {
      "affiliations": [
        "East London NHS Foundation Trust, London, London, UK"
      ],
      "name": "Joanne Beckmann"
    },
    {
      "affiliations": [
        "School of Education, University of Leicester, Leicester, UK"
      ],
      "name": "Jenny Bosworth"
    },
    {
      "affiliations": [
        "Neonatal Intensive Care Unit, Homerton University Hospital, London, UK"
      ],
      "name": "Philippa Chisholm"
    },
    {
      "affiliations": [
        "Glasgow Educational Psychology Service, Glasgow, UK"
      ],
      "name": "Alison Crawford"
    },
    {
      "affiliations": [
        "Executive Coach and Parent Representative, London, UK"
      ],
      "name": "Laurence Galland"
    },
    {
      "affiliations": [
        "School of Health, University of Leicester, Leicester, UK"
      ],
      "name": "Samantha Johnson"
    },
    {
      "affiliations": [
        "MOSAIC, London Borough of Camden, London, UK"
      ],
      "name": "Lexi Johnston"
    },
    {
      "affiliations": [
        "Neonatal Intensive Care Unit, Guy's and St Thomas’ Hospitals NHS Trust, London, UK"
      ],
      "name": "Anthony Kaiser"
    },
    {
      "affiliations": [
        "Occupational Therapy Department, Royal Free London NHS Foundation Trust, London, UK",
        "Neonatal Occupational Therapy, Children’s Health Ireland, Dublin, Ireland"
      ],
      "name": "Elaine McMahon"
    },
    {
      "affiliations": [
        "Neonatal Intensive Care, University College London, London, UK",
        "Neonatal Intensive Care, Great Ormond Street Hospital for Children, London, UK"
      ],
      "name": "Audrienne Sammut"
    },
    {
      "affiliations": [
        "Cambridgeshire Community Services NHS Trust, Cambridge, England, UK"
      ],
      "name": "Francesca Seregni"
    },
    {
      "affiliations": [
        "Neonatal Intensive Care Unit, Royal Hospital for Children, Glasgow, UK"
      ],
      "name": "Louise Leven"
    },
    {
      "affiliations": [
        "Leeds Community Healthcare NHS Trust, Leeds, UK"
      ],
      "name": "Monica Negoita"
    }
  ],
  "title": "Developmental follow-up, surveillance and support at the age of 4 years: a best practice guide from the British Association for Neonatal Neurodevelopmental Follow-Up",
  "uid": "fee21ea3-59b2-5ac2-8c19-ec4b4d15e5c2"
}