{
  "abstract": "Objectives To facilitate earlier access to palliative care (PC) for interstitial lung disease (ILD) patients, a combined ILD-PC clinic was launched at Royal Prince Alfred Hospital. We describe referral patterns and clinical practice 16 months post-implementation.Methods A review of consecutive patients referred to the ILD-PC clinic was performed. Reasons for referral, PC interventions implemented and clinical outcomes were documented.Results 36 patients were referred to the ILD-PC clinic (75±8 years; 57% men). Diagnoses included idiopathic pulmonary fibrosis (49%), unclassifiable ILD (14%), chronic hypersensitivity pneumonitis (14%) and connective tissue disease-associated ILD (11%). Reasons for referral included high symptom burden (91%), advanced disease (66%) and disease progression (49%). PC management strategies encompassed symptom management (60%), referral to community PC services (40%), advance care planning (26%) and the prescription of opioids and benzodiazepines (23%). During the follow-up period, 23% of patients self-reported worsening symptoms, 40% demonstrated lung function decline, 11% died and 6% were listed for lung transplantation.Conclusions The ILD-PC clinic incorporates a multidisciplinary, patient-centred approach to ILD care by enabling early access to symptom management, community services and advance care planning.",
  "authors": [
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Mymy Tran"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Respiratory & Critical Care Medicine, Changi General Hospital, Singapore"
      ],
      "name": "Kah Yee Tham"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia"
      ],
      "name": "Susanne Webster"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Lauren Troy"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Caitlin Fermoyle"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia"
      ],
      "name": "Christin Monika Geis"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Helen Jo"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Alan Teoh"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Laura Glenn"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia"
      ],
      "name": "Nathan Mortimer"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia"
      ],
      "name": "Kelly Mian Chen"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia"
      ],
      "name": "Aruvi Thiruvarudchelvan"
    },
    {
      "affiliations": [
        "Respiratory and Sleep Medicine, Royal Prince Alfred Hospital, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Tamera J Corte"
    },
    {
      "affiliations": [
        "Faculty of Medicine and Health, University of Sydney, Sydney, New South Wales, Australia",
        "Department of Palliative and Supportive Care, Royal Prince Alfred Hospital, Sydney, New South Wales, Australia"
      ],
      "name": "Anthoulla Mohamudally"
    }
  ],
  "title": "Interstitial lung disease: multidisciplinary outpatient palliative care service",
  "uid": "7f1a569d-05d2-5cca-b333-62043046c253"
}