{
  "abstract": "Background People with a learning disability (PWLD) are living longer with a greater need for palliative care. Research has identified that people with a learning disability experience challenges when accessing palliative care with concerns that person-centred care is not being achieved.Aim The overall aim of this study is to present a meta-synthesis of qualitative studies. Focusing on the challenges of achieving person-centred care for PWLD and palliative care needs, to gain a deeper understanding of the challenges they experience.Method A qualitative meta-synthesis literature review using a seven-phased model by Noblit and Hare was undertaken. An online literature search was conducted between 8 July 2024 and 31 July 2024 across four databases: SAGE publications, PubMed, Wiley Online Library and CINAHL.Results 10 studies were reviewed with 226 participants ranging from PWLD, support workers, health professionals and family members. Main themes identified were: a deficiency of knowledge, the importance of the environment, challenges in achieving effective communication and advance care planning to achieve better outcomes.Conclusion This qualitative meta-synthesis identifies the challenges of achieving person-centred care for PWLD and palliative care needs. It draws attention to person-centred theory and how this supports good person-centred care for PWLD. This paper went further to identify how person-centred theory links with the wider context of healthcare practice while exploring recommendations to improve practice and gaps in research.",
  "authors": [
    {
      "affiliations": [
        "NHS Ayrshire and Arran Learning Disability Service, NHS Ayrshire and Arran, Ayr, South Ayrshire, UK",
        "Queen Margaret University Edinburgh, Edinburgh, UK"
      ],
      "name": "Ashleigh Wilson"
    },
    {
      "affiliations": [
        "Queen Margaret University, Musselburgh, UK"
      ],
      "name": "Julie Young"
    },
    {
      "affiliations": [
        "Queen Margaret University Edinburgh, Musselburgh, UK"
      ],
      "name": "Erna Haraldsdottir"
    }
  ],
  "title": "Person-centred approach for people with learning disabilities in palliative care: the challenges",
  "uid": "4393d4eb-fdaa-5688-9742-71dab1aaf608"
}