{
  "abstract": "Background Chinese ethnic communities (CEC) represent a significant and growing population in the UK (Minority Rights Group. Chinese in the United Kingdom. 2022 [internet]), yet their end-of-life care needs remain under-explored (Ahn, Williams, Stankus, Saunders. J Ren Care. 2021;47(4):265-278). In particular, there is a notable lack of research and culturally tailored resources to support future care planning on goals of care at the end-of-life for this group. This highlights an urgent need to develop culturally appropriate and accessible interventions.Aim To culturally adapt a future care planning intervention with CEC in the UK to provide a culturally appropriate future care planning resource to enhance CEC’s knowledge and awareness on future care planning.Method Guided by the Medical Research Council framework (Skivington, Matthews, Simpson, et al. BMJ. 2021 Sep 30;374:n2061), we conducted four online interactive workshops with Chinese community members across the UK. A bilingual facilitator used visual aids and scenarios to prompt discussion on existing future care planning materials. Thematic analysis was used to identify adaptation needs in cultural differences, language, presentation, resources and values alignment. Findings were then integrated using a transcultural nursing theory (Leininger. J Transcult Nurs. 2002;13(3):189-92) to culturally revise a future care planning booklet.Results Thirty Chinese individuals living across the UK participated in this study. Most were female (90%) and the age range was between 21 to 57. Participants emphasised the need for indirect strategies when discussing end-of-life issues, valuing harmony and family-based decision-making. Recommendations included simplified language, use of culturally resonant metaphors, information on relevant legislation and clearer visual layout. Findings informed the revision of an existing future care planning resource through a cultural adaptation process, incorporating feedback from both lay stakeholders and expert reference group.Conclusion This first study of its kind highlights the value of participatory design in developing culturally appropriate future care planning resources for UK Chinese communities. Future research should assess the booklet’s impact and its relevance to other minority groups.",
  "authors": [
    {
      "affiliations": [
        "Queen’s University Belfast, Belfast, UK"
      ],
      "name": "Lijun Xue"
    },
    {
      "affiliations": [
        "Queen’s University Belfast, Belfast, UK"
      ],
      "name": "Julie Doherty"
    },
    {
      "affiliations": [
        "Queen’s University Belfast, Belfast, UK"
      ],
      "name": "Peter O’Halloran"
    },
    {
      "affiliations": [
        "Queen’s University Belfast, Belfast, UK"
      ],
      "name": "Roisin O’Neill"
    },
    {
      "affiliations": [
        "Queen’s University Belfast, Belfast, UK"
      ],
      "name": "Kevin Brazil"
    }
  ],
  "title": "O-20 Cultural adaptation of a future care planning intervention for Chinese ethnic communities in the UK",
  "uid": "b54f9bb2-5b32-539c-aa38-7ab3f3a32975"
}