{
  "abstract": "Background Little attention has been paid to the lived experiences of people with advanced disease and their families who are experiencing financial insecurity and low income at the end-of-life.Aims The primary aim of this qualitative study is to understand the experiences of people on low incomes who are living with advanced disease and those who support them in both rural and urban areas.Methods In this ongoing qualitative study, data collection comprises in-depth semi-structured interviews conducted with a diversity of purposively sampled participants recruited via national support services, third-sector organisations, and social media across three localities in the UK (North Wales, Scotland, and Hampshire) focusing on people living with advanced disease and family carers. The interview guide is designed to explore and capture individuals’ lived experiences. A framework approach is being employed to analyse the data and develop themes.Results Four preliminary themes have been developed from the analysis of interviews (n=40). (1) High heating costs and poorly insulated homes; (2) Issue related to travel including high costs, poor and unreliable public transport, and weather disruptions; (3) Expensive home adaptions, repairs, and specialised equipment, and; (4) Increased financial precarity due to limited accessibility to statutory health services. Despite this, strong community ties were revealed as a vital support system. Family, neighbours, and local charities provided financial aid and practical assistance, government benefits and charitable grants were essential in alleviating some financial stress. However, participants viewed income support as insufficient and application processes arduous. Additionally, access to schemes like Motability initially improved mobility and independence.Conclusion Preliminary findings offer valuable insights into the experiences of people living with advanced disease. The completed study outcomes will be shared with key stakeholders and recommendations co-developed including a policy brief for professionals, carers, and the public.Research Funder Marie Curie.",
  "authors": [
    {
      "affiliations": [
        "Liverpool John Moores University, Liverpool, UK"
      ],
      "name": "Caroline Mogan"
    },
    {
      "affiliations": [
        "Liverpool John Moores University, Liverpool, UK"
      ],
      "name": "Mari Lloyd-Williams"
    },
    {
      "affiliations": [
        "University of Southampton, Southampton, UK"
      ],
      "name": "Lynn Calman"
    },
    {
      "affiliations": [
        "University of Southampton, Southampton, UK"
      ],
      "name": "Jo Williams"
    },
    {
      "affiliations": [
        "University of Southampton, Southampton, UK"
      ],
      "name": "Michelle Myall"
    },
    {
      "affiliations": [
        "University of Glasgow, Glasgow, UK"
      ],
      "name": "Naomi Richards"
    },
    {
      "affiliations": [
        "University of Glasgow, Glasgow, UK"
      ],
      "name": "Sam Quinn"
    }
  ],
  "title": "P-163 Unreached – the impact of living with advanced disease on a low income in Rural and Urban areas",
  "uid": "744c4dcb-c5dd-550a-8323-9a3c99ca39cc"
}