{
  "abstract": "Objectives To report participation of school age children with Down syndrome (DS) and its relationship with adaptive functioning from Turkey, an upper-middle income country.Methods In a cross-sectional observational design, children with DS aged 5–12 years who were followed in Ankara University School of Medicine Department of Pediatrics, Developmental Pediatrics Division (AUDPD) between Jan 1st, 2020- Jan 1st 2025 were recruited. Expanded Guide for Monitoring Child Development (Expanded GMCD), the Participation and Environment Measure for Children and Youth (PEM-CY), Vineland Adaptive Behavior Scales Second Edition were used for this study.Results Of total 53 children, 47 (88.7%) children comprised the sample (mean age of 102±24 months and 51.1% boys). Most of the children (74.5%) had an additional chronic health condition and all had delay in adaptive functioning. Most mothers (61.7%) received >12 years of education. The average frequency of participation in PEM-CY was higher at home, compared to school and community (p<0.001). Most of the mothers expressed desire for change in school preparation (72.3%), classroom activities (70.2%) and involving getting together with other children (70.2%). Children who had significant adaptive functioning delay had lower mean frequency of participation at home (mean:4.98±1.0) and in community (mean:1.76±0.84), than children with delay.Conclusions School age children with DS had limitations in participation in life which was related to lower adaptive functioning from an upper middle-income country, Turkey. Interventions should aim supporting adaptive functioning as well as participation especially for children with DS and their families.",
  "authors": [
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Merve Betul Solmaz"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Ezgi Ozalp Akin"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Esin Onarici Guner"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Ayse Akkus"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Gulten Burcu Civelek Urey"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Efsun Korkmaz Seven"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Gokce Ozyilmaz Bozat"
    },
    {
      "affiliations": [
        "Ankara University School of Medicine, Department of Pediatrics, Developmental Pediatrics Division, Ankara, Turkey"
      ],
      "name": "Bahar Bingoler Pekcici"
    }
  ],
  "title": "143 Assessment of participation in school-aged children with down syndrome from Turkey",
  "uid": "8c5f3beb-8d53-56d1-856d-a6c943feb698"
}