{
  "abstract": "Background The social determinants of health contribute to health inequities experienced by children with neurodisability and pose barriers to engaging with healthcare systems. At an individual level, adverse social determinants of health are experienced as unmet social needs (USNs), for example, housing insecurity and financial hardship. Emerging evidence supports social prescribing interventions that systematically identify USNs and refer families to services to address these needs. This study aims to evaluate the effectiveness of a co-designed social prescribing programme to address the USNs of children with neurodisability and their parents/carers, its cost-effectiveness and cost-utility, and implementation and translation across the healthcare system.Methods and analysis The study will be conducted at the tertiary Paediatric Rehabilitation Services in New South Wales, Australia. A standardised screening tool will identify parents/carers experiencing USNs. Parents/carers who report one or more USN and consent will be eligible to participate in the randomised controlled trial. Participants will be randomised to an active control group or social prescribing intervention group (total sample size=392). The active control group will receive self-navigation via a resource pack containing information about services that can address USNs. The social prescribing intervention group will receive in-person Community Linker support, in addition to the resource pack. The screening tool, resource pack, and social prescribing intervention were co-designed with parents/carers of children with cerebral palsy and their healthcare professionals. The primary outcome is the effectiveness of interventions in reducing USNs. Secondary outcomes include parent/carer referrals to and engagement with support services, out-of-pocket expenses, child/young person and parent/carer health-related quality of life, parent/carer psychological distress, and child/young person hospital service use and emergency department presentations.Trial registration number ACTRN12625000324415.",
  "authors": [
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Katarina Ostojic"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Serena Chiu"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Sandra Takchi"
    },
    {
      "affiliations": [
        "HNEkidsRehab, John Hunter Children’s Hospital, Newcastle, New South Wales, Australia"
      ],
      "name": "Heather Burnett"
    },
    {
      "affiliations": [
        "Rehab2Kids, Sydney Children’s Hospital, The Sydney Children’s Hospitals Network, Westmead, New South Wales, Australia",
        "School of Paediatrics and Child Health, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Timothy Scott"
    },
    {
      "affiliations": [
        "The Children’s Hospital at Westmead, The Sydney Children’s Hospitals Network, Sydney, NSW, Australia"
      ],
      "name": "Mary-Clare Waugh"
    },
    {
      "affiliations": [
        "The Children’s Hospital at Westmead, The Sydney Children’s Hospitals Network, Sydney, NSW, Australia"
      ],
      "name": "Alison Berg"
    },
    {
      "affiliations": [
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Michael Hodgins"
    },
    {
      "affiliations": [
        "The Leeder Centre for Health Policy, Economics and Data, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Anagha Killedar"
    },
    {
      "affiliations": [
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Jahid Khan"
    },
    {
      "affiliations": [
        "Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Georgina Henry"
    },
    {
      "affiliations": [
        "Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Sarah Reedman"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Nursing Research Unit, The Sydney Children’s Hospitals Network, Sydney, New South Wales, Australia"
      ],
      "name": "Laurel Mimmo"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Coffs Harbour Health Campus, Mid North Coast Local Health District, Coffs Harbour, New South Wales, Australia"
      ],
      "name": "Isra Karem"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Shaini Shiva"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Sheikh Azmatullah"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Jack Calderan"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Masyitah Mohamed"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Anne Olaso"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Debbie van Hoek"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Matthew van Hoek"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Alunya Wilkinson"
    },
    {
      "affiliations": [
        "EPIC-ND Group, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Mackenzie Woodbury"
    },
    {
      "affiliations": [
        "School of Education, Faculty of Arts, Design and Architecture, University of New South Wales, Sydney, New South Wales, Australia",
        "Disability Innovation Institute, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Iva Strnadová"
    },
    {
      "affiliations": [
        "Discipline of Psychiatry Mental Health, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Anne Masi"
    },
    {
      "affiliations": [
        "University of New South Wales National Perinatal Epidemiology and Statistics Unit, Sydney, New South Wales, Australia"
      ],
      "name": "Georgina Chambers"
    },
    {
      "affiliations": [
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia",
        "Department of Community Child Health, The Sydney Children’s Hospitals Network, Sydney, New South Wales, Australia"
      ],
      "name": "Karen Zwi"
    },
    {
      "affiliations": [
        "Discipline of Psychiatry Mental Health, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Valsamma Eapen"
    },
    {
      "affiliations": [
        "Speciality of Child and Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Kids Research, The Sydney Children’s Hospitals Network, Sydney, New South Wales, Australia"
      ],
      "name": "Elizabeth Elliott"
    },
    {
      "affiliations": [
        "University of Technology Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Juanita Sherwood"
    },
    {
      "affiliations": [
        "Speciality of Child and Adolescent Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Russell Dale"
    },
    {
      "affiliations": [
        "Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Tanya Martin"
    },
    {
      "affiliations": [
        "Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Hayley Smithers Sheedy"
    },
    {
      "affiliations": [
        "Cerebral Palsy Alliance Research Institute, Specialty of Child and Adolescent Health, Sydney Medical School, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Sarah McIntyre"
    },
    {
      "affiliations": [
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Raghu Lingam"
    },
    {
      "affiliations": [
        "The Children’s Hospital at Westmead, The Sydney Children’s Hospitals Network, Sydney, NSW, Australia",
        "The Children’s Hospital at Westmead Clinical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Simon Paget"
    },
    {
      "affiliations": [
        "Community Paediatrics Research Group, Central Clinical School, Sydney Medical School, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Population Child Health Research Group, Discipline of Paediatrics, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Susan Woolfenden"
    },
    {
      "affiliations": [],
      "name": "EPIC-ND Group"
    }
  ],
  "title": "EPIC-ND: a multi-site, randomised controlled trial evaluating the effectiveness of social prescribing for the unmet social needs of children with a neurodisability and their parent/carers – a study protocol",
  "uid": "e4368df2-126d-507a-abd8-42a78f424f9f"
}