{
  "abstract": "Introduction Patient reported experience measures (PREMs) are important tools to include the voices of patients in healthcare provision. Children have a right to be included in decisions made about their care. A self-reported, locally validated and standardised paediatric PREM (pPREM) does not exist for use in Australian healthcare settings. Further, existing pPREMs are rarely codesigned with children or developed to be completed by children themselves. This study aims to validate a pPREM that will be completed by children within Australian healthcare settings.Methods and analysis This study will involve three subphases, engaging children aged 6–11 years old who have had a hospital admission in the past 3 months. First, up to 25 children will participate in cognitive interviews to pilot test pPREM items. Using feedback from the interviews, population testing will occur with about 180 children at six Australian hospitals to determine the validity, reliability and feasibility of the pPREM. The study’s implementation process will be evaluated through interviews with approximately 25–30 clinicians, managers and other stakeholders.",
  "authors": [
    {
      "affiliations": [
        "Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia",
        "Discipline of Psychiatry and Mental Health, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Karlen R Barr"
    },
    {
      "affiliations": [
        "NHMRC Clinical Trials Centre, University of Sydney, Camperdown, New South Wales, Australia",
        "Faculty of Medicine and Health, Susan Wakil School of Nursing and Midwifery, Sydney Quality of Life Office (SQOLO), University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Jessica Nikolovski"
    },
    {
      "affiliations": [
        "Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia",
        "Faculty of Medicine, School of Psychiatry, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "James R John"
    },
    {
      "affiliations": [
        "Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia",
        "Australian Institute of Health Innovation, Macquarie University, Sydney, New South Wales, Australia"
      ],
      "name": "Leslie White"
    },
    {
      "affiliations": [
        "Women's Healthcare Australasia and Children’s Healthcare Australasia, Mitchell, Australian Capital Territory, Australia"
      ],
      "name": "Sarah Elliott"
    },
    {
      "affiliations": [
        "The Sydney Children’s Hospitals Network, Sydney, New South Wales, Australia"
      ],
      "name": "Lynn McCartney"
    },
    {
      "affiliations": [
        "Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia",
        "Starlight Children’s Foundation, Sydney, New South Wales, Australia"
      ],
      "name": "Claire Treadgold"
    },
    {
      "affiliations": [
        "Women's Healthcare Australasia and Children’s Healthcare Australasia, Mitchell, Australian Capital Territory, Australia"
      ],
      "name": "Barb Vernon"
    },
    {
      "affiliations": [
        "Academic Unit of Infant, Child and Adolescent Psychiatry, South Western Sydney Local Health District, Liverpool, New South Wales, Australia",
        "Discipline of Psychiatry and Mental Health, School of Clinical Medicine, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "Valsamma Eapen"
    }
  ],
  "title": "Validating a codesigned paediatric patient reported experience measure: a study protocol",
  "uid": "7f8de0a0-3455-5565-a5a5-f65738d9e7d1"
}