{
  "abstract": "This audit aimed to determine whether the management of idiopathic intracranial hypertension (IIH) at Cambridge University Hospitals NHS Foundation Trust (CUH) adhered to the national consensus guidelines (Mollan et al 2018).Case notes for patients allocated a diagnosis of IIH (ICD code G93.2) in 2022 were audited against 17 quality standards derived from the national consensus guidelines. The target adherence for each standard was 100%.Twenty-one patients were included; all were female, aged 15 to 56. One hundred per cent of patients had a lumbar puncture and no patients were appropriate for neurosurgical referral. For the remaining 15 standards, target adherence of 100% was not met. Standards with the lowest adherence included recognition of rare disease burden (19%), consideration of sleep apnoea (19%), discussion regarding medication overuse headache (38%), ophthalmological follow-up timeframe (42.8%) and warning regarding teratogenetic risk of medication (47.6%). As a result of this audit, an IIH oversight committee has been set up at CUH to review IIH care and pathways and to provide documentation templates for encounters with IIH patients for neurologists and ophthalmologists including reminder prompts regarding the consensus guidelines. It has been 7 years since the publication of the consensus guidelines. An up-to-date national consensus on hospital quality standards for IIH is required. Furthermore, a national audit would determine whether there is variation in the quality of IIH care across the country and would likely result in improved care and outcomes for people living with IIH.",
  "authors": [
    {
      "affiliations": [
        "Addenbrooke’s Hospital, Cambridge, UK"
      ],
      "name": "Daisy MacKeith"
    }
  ],
  "title": "130046 An audit of the management of idiopathic intracranial hypertension",
  "uid": "fbf7da8c-ce52-595e-b453-8f053bf6c40b"
}