{
  "abstract": "Background Muslim immigrants and their direct descendants are a large ethnoreligious minority in many regions, yet their access to palliative care remains under-researched and poorly theorised for practice. Existing evidence points to structural, communicative and cultural constraints, while mechanisms at the threshold of access remain unclear.Aim We explored access to palliative care among this population, developed an explanatory model of access dynamics and reconstructed culturally and religiously framed narrative resources.Design We conducted a qualitative, multicentre, four-group study using constructivist Grounded theory with complementary Narrative inquiry. Loosely structured interviews followed Kaufmann’s ‘L’entretien compréhensif’ between August 2021 and December 2022.Setting/participants This study involved six centres in North Rhine-Westphalia, Germany. Participants were 53 adults from 14 countries in four groups (patients receiving palliative care vs not, relatives, interface stakeholders).Results The Grounded theory SAME SAME BUT DIFFERENT conceptualises a paradox between formal equality and lived constraint at the threshold of access. Six analytical categories operated cyclically and mutually reinforced delayed access: (I) Othering/Belonging, (II) Information/Representation, (III) Role of the family, (IV) Palliative stigma, (V) ‘Language barrier’ as a multidimensional challenge and (VI) Dealing with life crisis, illness and death.Participants identified leverage points within the access dynamics, including native-language information and contact persons, openness to cultural-religious concerns, culture- and religion-sensitive training, Muslim support services and spiritual care and non-denominational environments.Narrative inquiry reconstructed four culturally and religiously framed narrative resources that shaped access decisions.Conclusions Intersecting structural, communicative and meaning-making dynamics affect access to palliative care. Culturally adaptive, multilingual and community-engaged approaches require evaluation and should be supported by improved routine sociodemographic data.",
  "authors": [
    {
      "affiliations": [
        "Department of Palliative Care, University Hospital Münster, Münster, Germany",
        "Department of Medicine A, Hematology, Oncology, Hemostaseology and Pulmonology, University Hospital Münster, Münster, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Münster, University Hospital Münster, Münster, Germany"
      ],
      "name": "Florian Bernhardt"
    },
    {
      "affiliations": [
        "Department of Hospice Care, University Hospital Essen, Essen, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Essen, University Hospital Essen, Essen, Germany"
      ],
      "name": "Ferya Banaz-Yaşar"
    },
    {
      "affiliations": [
        "West German Cancer Center Consortium (WTZ), Network Partner Essen, University Hospital Essen, Essen, Germany",
        "Department of Palliative Medicine, University Hospital Essen, Essen, Germany"
      ],
      "name": "María Rosa Salvador Comino"
    },
    {
      "affiliations": [
        "St. Franziskus-Hospital Ahlen, Academic Teaching Hospital of the University of Münster, Ahlen, Germany",
        "Specialised Outpatient Palliative Care Service Warendorf, Warendorf, Germany"
      ],
      "name": "Thomas Altscher"
    },
    {
      "affiliations": [
        "Department of Palliative Care, University Hospital Münster, Münster, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Münster, University Hospital Münster, Münster, Germany"
      ],
      "name": "Burkhard Dasch"
    },
    {
      "affiliations": [
        "Department of Palliative Care, University Hospital Münster, Münster, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Münster, University Hospital Münster, Münster, Germany"
      ],
      "name": "Michael Terborg"
    },
    {
      "affiliations": [
        "Department of Hospice Care, University Hospital Essen, Essen, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Essen, University Hospital Essen, Essen, Germany"
      ],
      "name": "Karin Scheer"
    },
    {
      "affiliations": [
        "Specialised Outpatient Palliative Care Service Münster, Münster, Germany"
      ],
      "name": "Janina Krüger"
    },
    {
      "affiliations": [
        "West German Cancer Center Consortium (WTZ), Network Partner Münster, University Hospital Münster, Münster, Germany",
        "Department of Radiation Oncology, University Hospital Münster, Münster, Germany"
      ],
      "name": "David Rene Steike"
    },
    {
      "affiliations": [
        "West German Cancer Center Consortium (WTZ), Network Partner Essen, University Hospital Essen, Essen, Germany",
        "Department of Palliative Medicine, University Hospital Essen, Essen, Germany"
      ],
      "name": "Mitra Tewes"
    },
    {
      "affiliations": [
        "Department of Palliative Care, University Hospital Münster, Münster, Germany",
        "West German Cancer Center Consortium (WTZ), Network Partner Münster, University Hospital Münster, Münster, Germany"
      ],
      "name": "Philipp Lenz"
    }
  ],
  "title": "How is access to palliative care negotiated and accomplished among Muslim immigrants and their direct descendants in Germany, and what culturally and religiously framed narrative resources shape meaning-making in serious illness and approaching death? A multicentre four-group qualitative study using constructivist Grounded theory and Narrative inquiry",
  "uid": "02c0ac1a-ba33-5c50-8540-7b6301183cb2"
}