{
  "abstract": "Introduction While health research about persons of South Asian ancestry has been conducted for decades in Canada, it often uses pathologising approaches that fail to consider historical, social and political factors shaping health disparities. Further, this research rarely engages South Asian communities in meaningful ways, reinforcing feelings of disconnect and longstanding mistrust. Greater collaboration and transparency are needed to build trust and generate credible findings. The aims of this research protocol are to (1) examine how community engagement has been implemented in health research involving South Asian populations, (2) explore the experiences of both South Asian community members and academics involved in community-engaged research and (3) develop a framework guiding health research with and for South Asian communities in Canada, titled PRinciples to Operationalize Community Engagement, Equity, and Sustainability in South Asian Health Research in Canada (PROCESS).Methods and analysis This ongoing codesigned concurrent multimethods study is being conducted with community partners across Canadian provinces. First, the scoping review is examining how community engagement has been operationalised in health research involving South Asian populations in Canada. We are performing a search in Cumulative Index to Nursing and Allied Health Literature (CINAHL), MEDLINE, Web of Science, Scopus and PsycINFO databases for articles published between 2003 and 2024 referring to the concept of community engagement in South Asian health research. Two reviewers are independently completing abstract and full-text reviews based on preselected eligibility criteria. Data are being extracted from peer-reviewed studies using a data extraction framework. Findings will be aggregated and synthesised using descriptive content analyses. Second, a qualitative descriptive study is being conducted to explore the experiences of diverse stakeholders, including academics and community partners who are partaking in academic health research focused on South Asians. Semistructured interviews are being analysed using an inductive thematic content analysis. Results from the scoping review and qualitative interviews will be triangulated to detect emerging themes and patterns, which will enable the identification of principles to be incorporated within a draft of the PROCESS framework. In the final phase, we will use a modified Delphi process to iteratively codevelop the PROCESS framework with community partners and researchers across Canada.Ethics and dissemination The Faculty of Medicine and Health Sciences Institutional Review Board at McGill University approved the study’s protocol (24-05-080). Results will be submitted for publication in peer-reviewed journals and presented in academic and community forums. Results will also be shared with diverse audiences across Canada through multiple formats, including articles, conferences, infographics and social media, with the aim of raising awareness and promoting the adoption of research principles and practices for engaging South Asian communities in health research. This research received funding from the Canadian Institutes of Health Research (Grant #507768).",
  "authors": [
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Ananya Tina Banerjee"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Inaara Ismail"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Anglena Sarwar"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Maryam Parvez"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Palak Desai"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Mahak Arora"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Tarini Jayaprakash"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Bhavya Kalra"
    },
    {
      "affiliations": [
        "Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Joshun Dulai"
    },
    {
      "affiliations": [
        "Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Bilal Khan"
    },
    {
      "affiliations": [
        "Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Maria Chiu"
    },
    {
      "affiliations": [
        "Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Hani Rukh-E-Qamar"
    },
    {
      "affiliations": [
        "Punjabi Community Health Services, Mississauga, Ontario, Canada"
      ],
      "name": "Sheena Sabharwal"
    },
    {
      "affiliations": [
        "Punjabi Community Health Services, Mississauga, Ontario, Canada"
      ],
      "name": "Amandeep Kaur"
    },
    {
      "affiliations": [
        "Poetic Justice Foundation, Vancouver, British Columbia, Canada",
        "Moving Forward Family Services, Surrey, British Columbia, Canada"
      ],
      "name": "Anita Lal"
    },
    {
      "affiliations": [
        "Wilfrid Laurier University Lyle S Hallman Faculty of Social Work, Kitchener, Ontario, Canada"
      ],
      "name": "Maryam Khan"
    },
    {
      "affiliations": [
        "Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Nadha Hassen"
    },
    {
      "affiliations": [
        "School of Child & Youth Care, University of Victoria, Victoria, British Columbia, Canada",
        "South Asian Healing Network, Victoria, British Columbia, Canada"
      ],
      "name": "Jshandeep Jassal"
    },
    {
      "affiliations": [
        "RI-MUHC, Montreal, Québec, Canada",
        "Department of Medicine, McGill University, Montreal, Quebec, Canada"
      ],
      "name": "Kaberi Dasgupta"
    },
    {
      "affiliations": [
        "Provincial System Support Program, Centre for Addiction and Mental Health, Toronto, Ontario, Canada"
      ],
      "name": "Hinna Hafeez"
    },
    {
      "affiliations": [
        "School of Population & Global Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Jasleen Arneja"
    },
    {
      "affiliations": [
        "RI-MUHC, Montreal, Québec, Canada",
        "Department of Epidemiology Biostatistics and Occupational Health, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Patricia Li"
    },
    {
      "affiliations": [
        "Department of Family Medicine, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada"
      ],
      "name": "Baijayantha Mukhopadhyay"
    },
    {
      "affiliations": [
        "Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada",
        "Institute for Clinical Evaluative Sciences, Toronto, Ontario, Canada",
        "Edwin S.H. Leong Centre for Healthy Children, SickKids Research Institute & The University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Susitha Wanigaratne"
    },
    {
      "affiliations": [
        "Bangladeshi-Canadian Community Services (BCS), Toronto, Ontario, Canada"
      ],
      "name": "Nasima Akter"
    },
    {
      "affiliations": [
        "Moving Forward Family Services, Surrey, British Columbia, Canada"
      ],
      "name": "Gary Thandi"
    },
    {
      "affiliations": [
        "Indus Community Services, Mississauga, Ontario, Canada"
      ],
      "name": "Rachel Ferry"
    },
    {
      "affiliations": [
        "Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Noor-Ul-Huda Shah"
    },
    {
      "affiliations": [
        "Tamil Canadian Center for Civic Action, Toronto, Ontario, Canada"
      ],
      "name": "Aishane Ganeshwaran"
    },
    {
      "affiliations": [
        "Tamil Canadian Center for Civic Action, Toronto, Ontario, Canada"
      ],
      "name": "Neethan Shan"
    },
    {
      "affiliations": [
        "Alliance for South Asian AIDS Prevention, Toronto, Ontario, Canada"
      ],
      "name": "Moji Shirazi"
    },
    {
      "affiliations": [
        "Alliance for South Asian AIDS Prevention, Toronto, Ontario, Canada"
      ],
      "name": "Pranay Anand"
    },
    {
      "affiliations": [
        "Sher Pride, Surrey, British Columbia, Canada"
      ],
      "name": "Karn Sahota"
    },
    {
      "affiliations": [
        "School of Medicine, Department of Pediatrics, Division of General Pediatrics, Stanford University, Stanford, California, USA",
        "Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Shazeen Suleman"
    },
    {
      "affiliations": [
        "Department of Pediatrics, McMaster University, Hamilton, Ontario, Canada"
      ],
      "name": "Gita Wahi"
    },
    {
      "affiliations": [
        "Institute for Health Policy, Management, and Evaluation, University of Toronto, Toronto, Ontario, Canada",
        "Upstream Lab, Li Ka Shing Knowledge Institute, Unity Health Toronto, Toronto, Ontario, Canada",
        "Department of Family and Community Medicine, St. Michael’s Hospital, Toronto, Ontario, Canada"
      ],
      "name": "Andrew David Pinto"
    },
    {
      "affiliations": [
        "Council of Agencies Serving South Asians, Toronto, Ontario, Canada"
      ],
      "name": "Samya Hasan"
    },
    {
      "affiliations": [
        "School of Child & Youth Care, University of Victoria, Victoria, British Columbia, Canada"
      ],
      "name": "Mandeep Mucina"
    },
    {
      "affiliations": [
        "Ontario Institute for Studies in Education, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Rishi Krishnamoorthy"
    },
    {
      "affiliations": [
        "Schulich Library of Physical Sciences, Life Sciences, and Engineering, McGill University, Montreal, Quebec, Canada"
      ],
      "name": "Andrea Quaiattini"
    },
    {
      "affiliations": [
        "Department of Sociology, University of British Columbia, Vancouver, British Columbia, Canada"
      ],
      "name": "Gerry Veenstra"
    },
    {
      "affiliations": [
        "Department of Family Medicine and Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, Ontario, Canada"
      ],
      "name": "Gina Agarwal"
    },
    {
      "affiliations": [
        "Indus Community Services, Mississauga, Ontario, Canada"
      ],
      "name": "Gurpreet Malhotra"
    }
  ],
  "title": "PROCESS: a multimethods protocol to develop principles to operationalise community engagement, equity and sustainability in South Asian Health Research in Canada",
  "uid": "30f02a27-a422-56d0-a6b6-b180d97c0aec"
}