{
  "abstract": "Objectives To develop and user-test a patient decision aid for people diagnosed with degenerative cervical myelopathy and who are considering surgery.Design Mixed-methods study describing the development of a patient decision aid.Setting A draft decision aid was developed by a multidisciplinary steering group (including study authors with degenerative cervical myelopathy, health professionals and researchers) informed by the best available evidence, authorship consensus and existing patient decision aids.Participants Patient-participants and health professional-participants who manage people with degenerative cervical myelopathy were recruited through social media and the steering group’s research and practice network. Quantitative questionnaires were used to gather baseline data, descriptive feedback, refine the decision aid and assess its acceptability. Qualitative semi-structured interviews were conducted online to gather feedback on the decision aid and were analysed using reflexive thematic analysis.Results We conducted 32 interviews: 19 patient-participants and 13 health professional-participants who manage people with degenerative cervical myelopathy (neurosurgeons, neurologists, physiotherapists, orthopaedic surgeons, general practitioners, rehabilitation and pain specialists and consultant occupational physicians and chiropractors). Participants were from 10 countries (Australia, Canada, Cyprus, Germany, Ireland, New Zealand, Sweden, Switzerland, United Kingdom and USA). Most participants rated the decision aid’s acceptability as good-to-excellent and agreed with most aspects of the decision aid (eg, defining degenerative cervical myelopathy, management recommendations, potential benefits and harms, questions to consider asking a health professional).Conclusion Our patient decision aid was rated as an acceptable tool by both health professional-participants who treat degenerative cervical myelopathy and patient-participants with lived experience of degenerative cervical myelopathy. This decision aid can be used by clinicians and people with degenerative cervical myelopathy to help with shared decision making following a diagnosis of degenerative cervical myelopathy. A study testing the potential benefits of this decision aid in a clinical setting is recommended.",
  "authors": [
    {
      "affiliations": [
        "School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Sydney Musculoskeletal Health and Institute for Musculoskeletal Health, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Andrew R Gamble"
    },
    {
      "affiliations": [
        "School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "David B Anderson"
    },
    {
      "affiliations": [
        "School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Marnee J McKay"
    },
    {
      "affiliations": [
        "Discipline of Neurosurgery, Cambridge University Hospital, University of Cambridge, England, UK"
      ],
      "name": "Benjamin Davies"
    },
    {
      "affiliations": [
        "School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Sophie Macpherson"
    },
    {
      "affiliations": [
        "Discipline of Neurosurgery, Concord Repatriation General Hospital, Sydney, New South Wales, Australia",
        "Medicine and Health, University of New South Wales, Sydney, New South Wales, Australia"
      ],
      "name": "James Van Gelder"
    },
    {
      "affiliations": [
        "Institute for Evidence-Based Healthcare, Faculty of Health Sciences and Medicine, Bond University, Gold Coast, Queensland, Australia"
      ],
      "name": "Tammy Hoffmann"
    },
    {
      "affiliations": [
        "Sydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Kirsten McCaffery"
    },
    {
      "affiliations": [
        "School of Medicine, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Department of Medical Oncology, Queen’s University, Kingston, Ontario, Canada"
      ],
      "name": "Samuel X Stevens"
    },
    {
      "affiliations": [
        "Department of Surgery, Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Carlo Ammendolia"
    },
    {
      "affiliations": [
        "AUT Active Living and Rehabilitation Research Centre, Faculty of Health and Environmental Sciences, Auckland University of Technology, Auckland, New Zealand"
      ],
      "name": "Rohil V Chauhan"
    },
    {
      "affiliations": [
        "Spinal Cord Injury Center, Balgrist University Hospital Zurich, University of Zurich, Zürich, Switzerland"
      ],
      "name": "Carl M Zipser"
    },
    {
      "affiliations": [
        "Joint Department of Biomedical Engineering, Marquette University and The Medical College of Wisconsin, Milwaukee, WI, USA"
      ],
      "name": "Timothy F Boerger"
    },
    {
      "affiliations": [
        "Department of Neurology, Mass General Brigham, Boston, MA, USA"
      ],
      "name": "Lindsay A Tetreault"
    },
    {
      "affiliations": [
        "Division of Neurosurgery and Spine Program, University of Toronto and Krembil Neuroscience Centre, Toronto Western Hospital, University Health Network, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Michael G Fehlings"
    },
    {
      "affiliations": [
        "Nottingham University Hospitals, NHS Trust, Nottingham, UK"
      ],
      "name": "Elanor Dustan"
    },
    {
      "affiliations": [
        "Myelopathy.org, University of Cambridge, Cambridge, UK"
      ],
      "name": "Carolyn Nugent"
    },
    {
      "affiliations": [
        "Myelopathy.org, University of Cambridge, Cambridge, UK"
      ],
      "name": "Helen Holmgren"
    },
    {
      "affiliations": [
        "Edinburgh Spinal Surgery Outcomes Study Group, Department of Neurosurgery, Royal Infirmary Edinburgh, Scotland, UK"
      ],
      "name": "Andreas K Demetriades"
    },
    {
      "affiliations": [
        "Division of Biokinesiology and Physical Therapy, University of Southern California, Los Angeles, CA, USA"
      ],
      "name": "Justin M Lantz"
    },
    {
      "affiliations": [
        "Department of Surgery, University of Melbourne, Melbourne, Victoria, Australia",
        "Department of Neurosurgery, St Vincent’s Hospital, Melbourne, Victoria, Australia"
      ],
      "name": "Rana Dhillon"
    },
    {
      "affiliations": [
        "Sydney Musculoskeletal Health and Institute for Musculoskeletal Health, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Chris G Maher"
    },
    {
      "affiliations": [
        "School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia",
        "Sydney Musculoskeletal Health and Institute for Musculoskeletal Health, Sydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia"
      ],
      "name": "Joshua R Zadro"
    }
  ],
  "title": "Development and acceptability of a patient decision aid for people with degenerative cervical myelopathy: an international mixed-methods study",
  "uid": "396565c8-7a01-57e7-af3f-e65b41102920"
}