{
  "abstract": "Introduction The Dementia Leaders programme aims to enhance active public involvement in dementia research by developing a programme for potential coresearchers that includes the perspectives of individuals who experience the disease directly, such as people living with dementia, their informal caregivers and healthcare professionals. The planned study will evaluate this programme (which includes workshops, webinars and online meetings) with a focus on, for example, the content and structure of the programme as well as the experience of the participants regarding their active involvement.Methods and analysis A mixed-methods design will be used to evaluate the Dementia Leaders programme. For this purpose, we will conduct semistructured interviews with the participants in the programme. Additionally, we will conduct an online survey after each webinar associated with the programme. The data will be analysed using qualitative content analysis (for the interview data and the open-ended questions included in the online survey) and by employing descriptive statistical methods (for the closed-ended questions of the online survey). Finally, the results obtained via both analytical methods will be synthesised, interpreted and discussed.Ethics and dissemination This study received approval from the ethics committee of the German Society of Nursing Science (Number 25-014). The results will be presented and published alongside the coresearchers at (inter)national conferences and in journals targeting practitioners, caregivers and people living with dementia as well as in peer-reviewed journals.",
  "authors": [
    {
      "affiliations": [
        "Faculty of Health, School of Nursing Science, Witten/Herdecke University, Witten, NRW, Germany",
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany"
      ],
      "name": "Simone Anna Felding"
    },
    {
      "affiliations": [
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany",
        "Bielefeld University, Bielefeld, Germany"
      ],
      "name": "Kübra Altinok"
    },
    {
      "affiliations": [
        "Faculty of Health, School of Nursing Science, Witten/Herdecke University, Witten, NRW, Germany",
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany"
      ],
      "name": "Mike Rommerskirch-Manietta"
    },
    {
      "affiliations": [
        "Faculty of Health, School of Nursing Science, Witten/Herdecke University, Witten, NRW, Germany",
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany"
      ],
      "name": "Anna Louisa Hoffmann-Hoffrichter"
    },
    {
      "affiliations": [
        "Faculty of Health, School of Nursing Science, Witten/Herdecke University, Witten, NRW, Germany",
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany"
      ],
      "name": "Christina Manietta"
    },
    {
      "affiliations": [
        "Faculty of Health, School of Nursing Science, Witten/Herdecke University, Witten, NRW, Germany",
        "German Centre for Neurodegenerative Diseases, Witten, NRW, Germany"
      ],
      "name": "Martina Roes"
    }
  ],
  "title": "Becoming a coresearcher in dementia care research: a mixed-methods study protocol for evaluation of the Dementia Leaders programme",
  "uid": "eea6a08d-a896-5277-b435-38b0ac596696"
}