{
  "abstract": "Objectives To explore how thoracic surgical nurses perceive and respond to the chronic illness needs of individuals with myasthenia gravis undergoing thymectomy.Methods Data were collected through four focus group interviews using a semi-structured interview guide. The analysis followed a hermeneutic approach, identifying recurring themes through iterative interpretation and critical reflection. Nineteen thoracic surgical nurses from ward and postanaesthesia care unit settings participated, representing a diverse range of clinical experience. The study followed the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist for reporting the findings of this study.Results The analysis identified three overarching themes reflecting nurses’ experiences of caring for individuals with myasthenia gravis undergoing thymectomy. First, nurses described how the chronic aspects of the illness often ‘disappeared’ within the surgical care process, with attention focused mainly on procedural recovery, leaving patients’ broader illness needs unaddressed. Second, nurses experienced a dilemma between providing acute surgical care and responding to patients’ chronic illness understanding, highlighting uncertainty due to limited knowledge and lack of clear guidelines. Third, nurses emphasised the difficulty of managing the invisible and unpredictable symptoms of myasthenia gravis, which created a heightened need for vigilance but also uncertainty in symptom assessment and support. Across all themes, the findings suggest that surgical care practices may insufficiently recognise patients’ ongoing illness experiences, emphasising the need for greater knowledge, interdisciplinary collaboration and chronic illness-sensitive care approaches.Conclusions The study highlights the need for increased attention to chronic illness needs in surgical care, supporting interdisciplinary collaboration and tailored nursing practices that address the lived experiences of patients with chronic conditions.",
  "authors": [
    {
      "affiliations": [
        "Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark",
        "University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark"
      ],
      "name": "Malene Missel"
    },
    {
      "affiliations": [
        "Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"
      ],
      "name": "Pernille Orloff Donsel"
    },
    {
      "affiliations": [
        "Patient, Copenhagen, Denmark"
      ],
      "name": "Trine Fjællegaard Nielsen"
    },
    {
      "affiliations": [
        "Anesthesiology, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"
      ],
      "name": "Erik Lilja Secher"
    },
    {
      "affiliations": [
        "Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"
      ],
      "name": "Estephani Birkenfeldt Zeballos Medeiros"
    },
    {
      "affiliations": [
        "Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"
      ],
      "name": "Katrine Rude"
    },
    {
      "affiliations": [
        "Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"
      ],
      "name": "Joan Lilja Sunnleyg Højgaard"
    },
    {
      "affiliations": [
        "Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark"
      ],
      "name": "Niels-Erik Viby"
    },
    {
      "affiliations": [
        "Neuromuscular Physiology and Evaluation Laboratory, Neuromuscular Investigation Center, Institute of Myology, Paris, France"
      ],
      "name": "Simone Birnbaum"
    },
    {
      "affiliations": [
        "Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"
      ],
      "name": "Linda Kahr Andersen"
    },
    {
      "affiliations": [
        "Cardiothoracic Surgery, Copenhagen University Hospital Rigshospitalet Heart Centre, Copenhagen, Denmark",
        "University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark"
      ],
      "name": "Rene Horsleben Petersen"
    },
    {
      "affiliations": [
        "University of Copenhagen Faculty of Health and Medical Sciences, Copenhagen, Denmark",
        "Copenhagen Neuromuscular Center, Copenhagen University Hospital Neuroscience Centre, Copenhagen, Denmark"
      ],
      "name": "Nanna Witting"
    }
  ],
  "title": "Caring beyond the procedure: a qualitative study on thoracic surgery nurses’ perspectives on chronic illness experiences of individuals with myasthenia gravis undergoing thymectomy",
  "uid": "09603421-7fcb-5658-901b-60d280846fc7"
}