{
  "abstract": "Objective This study aimed to investigate the self-management experiences of individuals living with systemic lupus erythematosus (SLE) through the lens of the Capability, Opportunity, and Motivation-Behaviour model to inform the design of personalised self-management interventions.Design A phenomenological method, common in qualitative research, was used. Data were collected using semistructured in-depth interviews. Data collection and analysis were conducted concurrently, guided by the principle of reaching data saturation. The data were evaluated using thematic analysis.Setting The study was conducted in a quiet, private setting, either a classroom or consultation room, free from external disturbances.Participants Between March and September 2023, 15 individuals diagnosed with SLE who met the inclusion criteria participated in the in-depth interviews.Results A total of 15 patients were interviewed, and 3 themes and 9 subthemes regarding self-management experiences were extracted: (1) Capability level: Deficiency in disease knowledge and insufficient self-management skills; (2) Motivation level: Lack of self-management awareness, perceived benefits and risks, uncertainty about disease progression and appearance-related anxiety; (3) Opportunity level: Family understanding and support, social support and environmental facilitation.Conclusions SLE patients’ self-management behaviours are influenced by both personal experiences and external environments. Healthcare professionals should enhance health education, deliver individualised guidance, strengthen patients’ self-management awareness and psychological positivity, optimise medical resource allocation, and bolster social support to improve patients’self-management capabilities.",
  "authors": [
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Yan Zhao"
    },
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Wenjie Zhong"
    },
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Xin Ma"
    },
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Dandan Ren"
    },
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Xiangying Li"
    },
    {
      "affiliations": [
        "Department of Rheumatology and Immunology, The First Afffliated Hospital, and College of Clinical Medicine of Henan University of Science and Technology, Luoyang, China"
      ],
      "name": "Xiaofei Shi"
    }
  ],
  "title": "Self-management experiences of patients with systemic lupus erythematosus in China: a qualitative study",
  "uid": "28446698-6b26-582d-9223-5e2b9840b389"
}