{
  "abstract": "To help mitigate potential complications often experienced by adolescents with type 1 diabetes (T1D) during the transition to adult healthcare, transition care programs aim to provide developmentally appropriate healthcare, promote adolescent decision-making and self-care skills, and prepare adolescents for adult diabetes care. However, there is limited research considering parent/caregiver needs during the transition preparation process for adolescents with T1D.Objective To identify parent/caregiver perspectives prior to taking part in a transition care intervention involving group education sessions and peer support for parents/caregivers of adolescents with T1D.Design and Setting Pre-intervention, semi-structured interviews were conducted with parents/caregivers of adolescents (14–16 years) with T1D followed in a tertiary care paediatric diabetes clinic and participating in a pilot, randomised controlled trial: The Group Education Trial to Improve Transition for Parents/Caregivers of Adolescents with T1D (ClinicalTrials.gov ID: NCT05445284). We conducted a reflexive thematic analysis to identify key aspects of the intervention that may help support parents/caregivers of adolescents with T1D during their transition to adult care.Participants Of the 17 parents/caregivers randomized to the intervention group, 13 completed pre-intervention interviews.Results Four themes were generated from the parents/caregivers, including (1) Creating a Community of Learners (i.e., importance of fostering a bidirectional and supportive environment for parents/caregivers), (2) Psychological Perspectives of Parenting (i.e., acknowledgement of shifting parental/caregiver roles during adolescents’ transition), (3) Diabetes Management During Adolescence (i.e., identification of relevant diabetes education topics to be covered), and (4) Ideal Format and Delivery of the Program (i.e., practical recommendations for the logistics of the intervention).Conclusions The findings provide practical and pragmatic suggestions to refine the parent/caregiver-based transition of care intervention for a future, full-scale trial, including addressing parental/caregiver needs as they learn how to best support their adolescent with T1D during transition to adulthood. Future transition programmes for adolescents with T1D may also benefit by incorporating aspects of the current transition readiness program for parents/caregivers of adolescents with T1D.",
  "authors": [
    {
      "affiliations": [
        "Department of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada"
      ],
      "name": "Kenzie Tapp"
    },
    {
      "affiliations": [
        "Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada"
      ],
      "name": "Elise Mok"
    },
    {
      "affiliations": [
        "Department of Social Services, Montreal Children’s Hospital, McGill University Health Center, Montreal, Québec, Canada"
      ],
      "name": "Dawn Davis"
    },
    {
      "affiliations": [
        "Department of Psychoeducation, Montreal Children’s Hospital, McGill University Health Center, Montreal, Québec, Canada"
      ],
      "name": "Sylvia Guérin-Marion"
    },
    {
      "affiliations": [
        "Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada"
      ],
      "name": "Jennifer Frei"
    },
    {
      "affiliations": [
        "Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada"
      ],
      "name": "Michele Gibbon"
    },
    {
      "affiliations": [
        "Division of Endocrinology, CHU Sainte-Justine, Montreal, Québec, Canada",
        "Department of Pediatrics, University of Montreal, Montreal, Quebec, Canada",
        "School of Public Health, Department of Social and Preventive Medicine, University of Montreal, Montreal, Quebec, Canada"
      ],
      "name": "Melanie Henderson"
    },
    {
      "affiliations": [
        "Department of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada"
      ],
      "name": "Melissa Miljanovski"
    },
    {
      "affiliations": [
        "Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada",
        "Department of Medicine, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Deborah Da Costa"
    },
    {
      "affiliations": [
        "Division of Endocrinology, The Hospital for Sick Children, Toronto, Ontario, Canada",
        "Child Health Evaluative Sciences, SickKids Research Institute, Toronto, Ontario, Canada",
        "Department of Pediatrics, University of Toronto Temerty Faculty of Medicine, Toronto, Ontario, Canada"
      ],
      "name": "Rayzel Shulman"
    },
    {
      "affiliations": [
        "Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Québec, Canada",
        "Endocrinology and Metabolism, Montreal Children's Hospital, McGill University Health Centre, Montreal, Québec, Canada",
        "Faculty of Medicine and Health Sciences, McGill University, Montreal, Québec, Canada"
      ],
      "name": "Meranda Nakhla"
    },
    {
      "affiliations": [
        "Department of Psychology, University of Windsor Faculty of Arts and Social Sciences, Windsor, Ontario, Canada"
      ],
      "name": "Jessica Kichler"
    }
  ],
  "title": "Perspectives of parents/caregivers prior to a pilot intervention trial to improve transition to adult care for adolescents with type 1 diabetes: A qualitative study",
  "uid": "e9394d6d-714e-5899-864d-dbfece45c3e6"
}