{
  "abstract": "Introduction Self-care plays a pivotal role in the management of heart failure (HF). Health literacy and empowerment are considered the prerequisites of effective self-care. This project aims to improve self-management in people with HF by describing, analysing and enhancing the communication practices of clinicians and patients to support people with HF to increase their health literacy skills and participate in shared decision-making.Methods and analysis A multimethod research design incorporating an interview component, a concurrent mixed-methods component and a pilot intervention study is used. The study is currently being conducted at two Australian hospitals in metropolitan areas (one public and one private). The interview component involves semistructured interviews with healthcare providers and hospital executives and managers at the participating sites to explore perceived barriers and facilitators to HF self-management and understand the institutional context of HF care. The concurrent mixed-methods components include: (a) tracking and audio recording the clinical interactions of patients with HF (n=30) during their hospitalisation and up to 6 months after discharge and semistructured interviews with the patient (and the carer) and the participating clinician after each clinical interaction and (b) collecting longitudinal survey data (n=180, patients) to track patients’ health literacy, empowerment and self-management over 6 months. The pilot feasibility study includes developing a complex intervention for clinicians and patients and evaluating its acceptability and potential in improving health literacy and reducing readmissions, length of stay and costs.Ethics and dissemination This study was approved by the Australian Capital Territory Health (2023.ETH.00007) and Edith Cowan University (023–04314-SAUNDERS) Human Research Ethics Committees. Informed consent was obtained and will continue to be sought from all participants. Study results will be disseminated in peer-reviewed journals.",
  "authors": [
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Neda Karimi"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Francesco De Toni"
    },
    {
      "affiliations": [
        "Canberra Health Services, Garran, Australian Capital Territory, Australia"
      ],
      "name": "Walter Abhayaratna"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Blake Askelin"
    },
    {
      "affiliations": [
        "Hollywood Private Hospital, Nedlands, Western Australia, Australia"
      ],
      "name": "Philip Currie"
    },
    {
      "affiliations": [
        "Hollywood Private Hospital, Nedlands, Western Australia, Australia"
      ],
      "name": "Karol Edge"
    },
    {
      "affiliations": [
        "WA Centre for Health and Ageing, The University of Western Australia, Perth, Western Australia, Australia",
        "Royal Perth Hospital, Perth, Western Australia, Australia"
      ],
      "name": "Christopher Etherton-Beer"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Elizabeth Fewster"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Liza Goncharov"
    },
    {
      "affiliations": [
        "Hollywood Private Hospital, Nedlands, Western Australia, Australia",
        "Centre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Joondalup, Western Australia, Australia"
      ],
      "name": "Nisha Jijo"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Susy Macqueen"
    },
    {
      "affiliations": [
        "Centre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Joondalup, Western Australia, Australia"
      ],
      "name": "Nilufeur Mckay"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Suzanne Raine"
    },
    {
      "affiliations": [
        "School of Allied Health (Nursing), The University of Western Australia, Perth, Western Australia, Australia"
      ],
      "name": "Amineh Rashidi"
    },
    {
      "affiliations": [
        "School of Nursing and Midwifery, Edith Cowan University, Joondalup, Western Australia, Australia",
        "College of Medicine and Dentistry, James Cook University, Cairns, Queensland, Australia"
      ],
      "name": "Christopher Rouen"
    },
    {
      "affiliations": [
        "Hollywood Private Hospital, Nedlands, Western Australia, Australia",
        "Centre for Research in Aged Care, School of Nursing and Midwifery, Edith Cowan University, Joondalup, Western Australia, Australia"
      ],
      "name": "Rosemary Saunders"
    },
    {
      "affiliations": [
        "Faculty of Communication, Culture and Society, University of Lugano, Lugano, TI, Switzerland",
        "Wee Kim Wee School of Communication and Information & LKC School of Medicine, Nanyang Technological University, Singapore"
      ],
      "name": "Peter Schulz"
    },
    {
      "affiliations": [
        "Hollywood Private Hospital, Nedlands, Western Australia, Australia"
      ],
      "name": "Rhea Tecson"
    },
    {
      "affiliations": [
        "Institute for Communication in Health Care, School of Literature, Languages and Linguistics, Australian National University, Canberra, Australian Capital Territory, Australia"
      ],
      "name": "Diana Slade"
    }
  ],
  "title": "Improving communication to enhance health literacy and self-management of heart failure: protocol for a multimethod study",
  "uid": "5992b5f1-1f6e-5274-9dec-14e784f7ff80"
}