{
  "abstract": "Introduction Haemophilia is a rare inherited bleeding disorder with complex support and costly treatment. Comprehensive care for people with haemophilia (PwH) must take place in structured and continuously evaluated treatment centres. The aim of the Public Assistance for People with Haemophilia in Brazil Project (PATCH Project) is to assess the infrastructure, human resources and healthcare delivery processes of Brazilian Blood Centres (BC) involved in the provision of haemophilia care.Methods and analysis This is a nationwide cross-sectional study involving 98 BC across Brazil’s 26 states and the Federal District, focusing on the care provided to PwH. A self-administered structured questionnaire was prepared, based on national and international recommendations for management, treatment and outcomes assessment in PwH. The criteria of the World Federation of Haemophilia and the European Association for Haemophilia and Allied Disorders will be used to define standards of quality.Ethics and dissemination Ethical approval for this study was granted by the Human Research Ethics Committee of the Federal University of Goiás, the coordinating centre (protocol CAAE 53863221.8.0000.5078), and subsequently by all participating institutions. Written informed consent is obtained from all participants prior to enrolment. Study findings will be disseminated through publication in peer-reviewed journals and presentation at international scientific conferences. Research data will be managed in accordance with ethical and legal standards and will be made available on reasonable request to support future investigations.Protocol registration Not applicable",
  "authors": [
    {
      "affiliations": [
        "Federal University of Goiás, Faculty of Medicine, Goiânia, GO, Brazil",
        "Hemolabor Hematologia e Laboratório, Setor Hematologia, Goiânia, GO, Brazil",
        "Department of Health, Government of Goiás, Goiânia, GO, Brazil"
      ],
      "name": "Maria do Rosário Ferraz Roberti"
    },
    {
      "affiliations": [
        "Federal University of Goiás, Faculty of Medicine, Goiânia, GO, Brazil"
      ],
      "name": "Yasmin Ricarda e Azevedo Géa"
    },
    {
      "affiliations": [
        "Federal University of Goiás, Faculty of Medicine, Goiânia, GO, Brazil"
      ],
      "name": "Isadora Almeida Marinho"
    },
    {
      "affiliations": [
        "Hemolabor Hematologia e Laboratório, Setor Hematologia, Goiânia, GO, Brazil",
        "Federal University of Goiás, Intitute of Tropical Pathology and Public Health, Postgraduate Program in Public Health, Goiânia, GO, Brazil"
      ],
      "name": "Pollyana Pinheiro Inácio"
    },
    {
      "affiliations": [
        "Federal University of Minas Gerais, Faculty of Medicine, Belo Horizonte, MG, Brazil"
      ],
      "name": "Ricardo Mesquita Camelo"
    },
    {
      "affiliations": [
        "University of Brasilia, Faculty of Medicine, Brasília, DF, Brazil",
        "University of Brasilia, Postgraduate Program in Public Health, Brasilia, DF, Brazil"
      ],
      "name": "Thiago Figueiredo de Castro"
    },
    {
      "affiliations": [
        "Federal University of Goiás, Faculty of Medicine, Goiânia, GO, Brazil",
        "Federal University of Goiás, Intitute of Tropical Pathology and Public Health, Postgraduate Program in Public Health, Goiânia, GO, Brazil",
        "University of Brasília, Faculty of Medicine, Postgraduate Program in Medical Sciences, Brasília, DF, Brazil"
      ],
      "name": "Sandro Rogério Rodrigues Batista"
    }
  ],
  "title": "Public health assistance for people with haemophilia in Brazil (PATCH study): a cross-sectional study protocol",
  "uid": "0bc38bc7-3245-54af-b9f5-c7b99cfeefe9"
}