{
  "abstract": "Introduction Community participatory modelling merges participatory research approaches with mathematical modelling. Participatory approaches are grounded in the engagement of people with lived experience (eg, who are affected by the health condition under study) throughout the research process. Mathematical modelling of infectious disease (ID) dynamic transmissions is increasingly used as a tool for public health decision-making, generating predictions, inferring mechanisms and estimating the impact of potential interventions—all of which guide policies, strategies and resource allocation as part of the preparation and response to ID epidemics. However, little is known about the engagement of people with lived experience and affected communities in the ID modelling process. We will map the literature to explore participatory approaches undertaken in ID modelling (practical aspects of formalising participatory modelling), levels of participation and the potential influence from the perspective of communities engaged.Methods and analysis The scoping review will follow the Joanna Briggs Institute Manual for Evidence Synthesis. The search strategy includes three electronic bibliographic databases (MEDLINE, Scopus and Embase), no language restrictions and sources published from 2000 to present. We will implement the search with and without the participatory keyword, as we recognise that some studies do not explicitly term community engagement as participatory modelling. After deduplication, two authors will independently screen the titles, abstracts and full texts, with discrepancies resolved with a third team member. We will extract the relevant information from the main text, parameter tables, supplemental files, bibliography, acknowledgment and author affiliation sections. The data extraction will follow a deductive content analysis where we draw from community-based participatory research approaches and established mathematical modelling steps. We will also extract data to assess whether there was equitable engagement of knowledge users by checking for indicators of three equitable engagement domains as outlined by the Ward framework (equity within partnership (eg, whether knowledge user influenced modelling decisions or remuneration), capacity to engage in future partnerships and shift in power/influence (eg, coauthorship). We will supplement our narrative analyses with summaries in tabular format and using appropriate data visualisations.Ethics and dissemination No ethics approval will be required for this scoping review because we will map evidence from publicly available literature sources. We will develop multilingual abstracts or one-page lay summaries of the findings (English, French and Swahili), a policy brief and will coauthor an open-access journal article. A summary of the findings will be shared via knowledge user-led presentations at the Maisha HIV and AIDS Conference and with other community-based organisations at the quarterly peer-to-peer support meetings.Registration The protocol has been registered in Open Science Framework, DOI: https://doi.org/10.17605/OSF.IO/XQ2WP (December 2024).",
  "authors": [
    {
      "affiliations": [
        "Division of Epidemiology, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Nancy B Tahmo"
    },
    {
      "affiliations": [
        "Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Chidumebi Idemili"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "An Empowered Just and Inclusive Society (AMKENI) Malindi, Kilifi, Kenya"
      ],
      "name": "Anthony Noah"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "ISHTAR, Nairobi, Kenya"
      ],
      "name": "Byron Odhiambo"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "ISHTAR, Nairobi, Kenya"
      ],
      "name": "Charles Kyalo"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "HIV & AIDS People’s Alliance (HAPA) Kenya, Mombasa, Kenya"
      ],
      "name": "Fortune Ligare"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "Health Options for Young Men on HIV/AIDS & STI (HOYMAS), Nairobi, Kenya"
      ],
      "name": "Jedidah Wanjiku"
    },
    {
      "affiliations": [
        "Division of Epidemiology, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada",
        "Africa-Canada Artificial Intelligence and Data Innovation Consortium (ACADIC), Department of Mathematics and Statistics, York University, Toronto, Ontario, Canada",
        "Global South Artificial Intelligence for Pandemic and Epidemic Preparedness and Response Network (AI4PEP), Toronto, Ontario, Canada"
      ],
      "name": "Jude Dzevela Kong"
    },
    {
      "affiliations": [
        "Infection Prevention and Control, Sunnybrook Health Sciences Centre, Toronto, Ontario, Canada",
        "Division of Infectious Diseases, Department of Medicine, Sunnybrook Health Sciences Centre, University of Toronto, Toronto, Ontario, Canada",
        "Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Adrienne K Chan"
    },
    {
      "affiliations": [
        "Department of Epidemiology, Johns Hopkins Bloomberg School of Public Health, Johns Hopkins University, Baltimore, Maryland, USA"
      ],
      "name": "Stefan Baral"
    },
    {
      "affiliations": [
        "Health Research Intervention Kuthamini Afya Yetu (HEKA), Kenya, Kenya",
        "ISHTAR, Nairobi, Kenya",
        "Community Research and Technical Support Hub, Nairobi, Kenya"
      ],
      "name": "Jeffrey Walimbwa"
    },
    {
      "affiliations": [
        "Institute for Global Public Health, University of Manitoba, Winnipeg, Manitoba, Canada",
        "Department of Community Health Sciences, University of Manitoba, Winnipeg, Manitoba, Canada"
      ],
      "name": "Lisa Lazarus"
    },
    {
      "affiliations": [
        "Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada",
        "Li Ka Shing Knowledge Institute, St Michael’s Hospital, Toronto, Ontario, Canada",
        "Department of Medicine, University of Toronto, Toronto, Ontario, Canada",
        "Department of Emergency Medicine, Unity Health Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Lisa M Puchalski Ritchie"
    },
    {
      "affiliations": [
        "Institute of Health Policy, Management and Evaluation, Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada",
        "MAP Centre for Urban Health Solutions, St Michael’s Hospital, Toronto, Ontario, Canada",
        "Department of Medicine and Institute of Medical Sciences, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Sharmistha Mishra"
    }
  ],
  "title": "Community participatory approaches in infectious disease dynamic transmission modelling: a scoping review protocol",
  "uid": "138eb084-309c-5239-8786-dbb0e43bb4cf"
}