{
  "abstract": "Objectives To describe the usage patterns of patients and healthcare professionals (HCPs) using a person-centred telehealth and e-health intervention.Design An exploratory, descriptive, observational study embedded in the “Person-centred care at a distance (PROTECT)” randomised controlled trial (ClinicalTrials.gov: NCT03183817) as part of a process evaluation. Data on intervention use and time spent on the intervention were collected. Descriptive statistics were calculated.Setting Participants were recruited from nine public primary healthcare facilities located in various areas of Gothenburg, Sweden.Participants 110 patients participating in the intervention group in the PROTECT trial were included. Participants were diagnosed with chronic heart failure (CHF, n=42), chronic obstructive pulmonary disease (COPD, n=56) or both (n=12). They were 33–93 years old (mean 71 years).Primary and secondary outcome measures A secondary outcome report on resource use.Intervention The 6-month-long intervention was performed as an add-on to standard care and comprised person-centred telephone support and access to a digital platform. Per-protocol use included co-creation of a health plan via the telephone and use of the digital platform at least once. Forms of use were tailored to the preferences and needs of the patients.Results Most intervention activities took place in the first 3 months of the intervention. Most patients used a combination of phone and digital support, spending most of their time using the digital platform. Overall, patients and HCPs spent 6 and 2.5 hours/patient using the intervention, respectively. Of this time, 1.5 hours involved synchronous communication through phone calls, with health-plan calls averaging 77 min.Conclusions The intervention usage patterns of patients and HCPs differed. Despite HCPs being accessible when required, patients dedicated most of their time to self-care practices. Based on time distribution data, 15 full-time HCPs could potentially co-create, document and follow-up on health plans for 10 000 patients under study conditions.Trial registration number ClinicalTrials.gov: NCT03183817.",
  "authors": [
    {
      "affiliations": [
        "Department of Health and Rehabilitation, University of Gothenburg Institute of Neuroscience and Physiology, Box 455, 405 30 Gothenburg, Sweden",
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden"
      ],
      "name": "Emmelie Barenfeld"
    },
    {
      "affiliations": [
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden",
        "Department of Medicine, Geriatrics and Emergency Medicine, Sahlgrenska University Hospital Ostra Hospital, Gothenburg, Sweden"
      ],
      "name": "Inger Ekman"
    },
    {
      "affiliations": [
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden",
        "Department of Psychotic Disorders, Sahlgrenska University Hospital, Gothenburg, Region Västra Götaland, Sweden"
      ],
      "name": "Matilda Cederberg"
    },
    {
      "affiliations": [
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden",
        "Region Västra Götaland, Research, Education, Development and Innovation, Primary Health Care, Gothenburg, Sweden"
      ],
      "name": "Andreas Fors"
    },
    {
      "affiliations": [
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden",
        "Department of Psychiatry, Sahlgrenska University Hospital, Gothenburg, Sweden"
      ],
      "name": "Lilas Ali"
    },
    {
      "affiliations": [
        "Institute of Health and Care Sciences, University of Gothenburg Sahlgrenska Academy, Gothenburg, Sweden",
        "University of Gothenburg Centre for Person-Centred Care (GPCC), Gothenburg, Sweden"
      ],
      "name": "Hanna Gyllensten"
    }
  ],
  "title": "Patient and healthcare professional engagement and time use within a randomised controlled trial: investigating intervention costs associated with remote person-centred care in Sweden",
  "uid": "4640bf45-0e3c-5de6-84b4-ff4c6558336c"
}
