{
  "abstract": "Objectives The Episodic Disability Questionnaire (EDQ) was developed to measure the presence, severity and episodic nature of disability experienced among persons with chronic conditions. Our aim was to assess the sensibility, utility and implementation considerations of the EDQ among older adults with complex health needs.Design Cross-sectional measurement study involving quantitative and qualitative methods of data collection. Participants We recruited community-dwelling older adults (65 years of age or older) living with complex health needs receiving care from a primary healthcare team in Toronto, Canada.Methods We administered the EDQ, sensibility questionnaire (assessing face and content validity, and ease of usage, with each item scored from 0 to 7 with greater scores indicating greater sensibility) and demographic questionnaire, followed by a semi-structured interview in the home or clinical setting. Using an interview guide, we asked participants about their perspectives on utility, format and implementation of the EDQ in clinical practice. We considered the EDQ sensible if the median score on the sensibility questionnaire was ≥5/7 for ≥80% of items and if none of the items had a median score of ≤3/7. We conducted a team-based directed content analysis of the interview transcripts.Results The median age of the 11 participants in this study was 83 years of age. All participants reported living with two or more chronic health conditions, with osteoarthritis (n=5) and diabetes (n=4) most frequently reported. The EDQ met the criterion for sensibility as measured by the sensibility questionnaire. Interview data from participants (n=10) indicated that the EDQ represents the health-related challenges among this sample of older adults with complex health needs, captures the episodic nature of disability and was easy to use. Utility of the EDQ included providing clinicians with a holistic understanding of health challenges older adults face, aiding in intervention planning and measuring changes in disability over time. Six of the participants also expressed uncertainty as to how the EDQ specifically could be used by clinicians in their care. Considerations for implementation included mode of administration (paper or electronic) and the importance of communicating EDQ scores with older adults based on individual preferences.Conclusions The EDQ possesses sensibility and utility for use among this sample of older adults living with complex health needs in home or clinical care settings.",
  "authors": [
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Shaheer Khawar"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Shelby Cameron"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Jahanvi Patel"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Simona Kukuruzovic"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Kiana Wong"
    },
    {
      "affiliations": [
        "St Michael's Hospital, Department of Family and Community Medicine, and St Michael’s Hospital Academic Family Health Team, Toronto, Ontario, Canada",
        "Department of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Ann Stewart"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada",
        "McMaster Collaborative for Health and Aging, McMaster University, Hamilton, Ontario, Canada"
      ],
      "name": "Soo Chan Carusone"
    },
    {
      "affiliations": [
        "Department of Physical Therapy, Temerty Faculty of Medicine, University of Toronto, Toronto, Ontario, Canada",
        "Institute of Health Policy, Management and Evaluation (IHPME), Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada",
        "Rehabilitation Sciences Institute (RSI), University of Toronto, Toronto, Ontario, Canada"
      ],
      "name": "Kelly K O’Brien"
    }
  ],
  "title": "Assessing the sensibility, utility and implementation considerations of the Episodic Disability Questionnaire with older adults living with complex health needs: a cross-sectional measurement study",
  "uid": "0d8cbfd0-ec14-5183-b70f-39675e2c0f4c"
}