{
  "abstract": "Introduction We report the collaborative views of a group of nurses, midwives and allied health professionals (NMAHPs) in the UK who have a genomics research remit or interest. Our group includes genetic counsellors under this diverse category of healthcare workers.This group came together as part of the National Institute for Health and Social Care Research (NIHR) Genomics Research National Specialty Group. After responding to a survey to elicit the views of NMAHPs working in genomics, some of the original 45 respondents, along with others who learnt of the project by word of mouth, have worked together to produce this article.Objective The paper aims to set out in clear terms the value of NMAHPs to research that supports the patient-centred implementation of genomics in the National Health Service (NHS).Key argument We discuss four potential areas where NMAHPs, in particular, can contribute to the research. These are patient perspectives and epistemic justice, psychosocial impacts, the familial nature of genomics and equity. We argue that this group (NMAHPs) represents a potentially underused resource for the NHS as it seeks to ensure that advances in genomics are translated into patient benefit.Conclusions We propose that NMAHPs, with our research expertise, are well placed to shape and deliver a research agenda that explores models of patient-centred care in the genomics era. We call for increased funding for NMAHP research roles and funding opportunities to deliver this fundamental work.",
  "authors": [
    {
      "affiliations": [
        "Northern Genetics Service, Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "Lorraine Cowley"
    },
    {
      "affiliations": [
        "Faculty of Education, Cambridge University, Cambridge, UK",
        "Engagement and Society, Wellcome Connecting Science, Hinxton, UK"
      ],
      "name": "Sasha Henriques"
    },
    {
      "affiliations": [
        "East Suffolk and North Essex NHS foundation Trust, Colchester, UK"
      ],
      "name": "J Roberts"
    },
    {
      "affiliations": [
        "St Mark’s Centre for Familial Intestinal Cancer, London North West University Healthcare NHS Trust, Harrow, London, UK"
      ],
      "name": "Laura Monje-Garcia"
    },
    {
      "affiliations": [
        "The Royal Marsden NHS Foundation Trust, The Institute of Cancer Research, London, UK"
      ],
      "name": "J Nolan"
    },
    {
      "affiliations": [
        "Oxford University Hospitals NHS Foundation Trust, Oxford, UK"
      ],
      "name": "K Lubasch"
    },
    {
      "affiliations": [
        "Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "R Theobald"
    },
    {
      "affiliations": [
        "Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "R Greer"
    },
    {
      "affiliations": [
        "University of Cambridge School of Clinical Medicine, Cambridge, UK"
      ],
      "name": "N Fennell"
    },
    {
      "affiliations": [
        "Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "A Clarkson"
    },
    {
      "affiliations": [
        "North Cumbria Integrated Care NHS Foundation Trust, Penrith, Cumbria, UK"
      ],
      "name": "M Clapham"
    },
    {
      "affiliations": [
        "Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "S Chilton"
    },
    {
      "affiliations": [
        "Newcastle Upon Tyne Hospitals NHS Foundation Trust, Newcastle Upon Tyne, UK"
      ],
      "name": "R Allon"
    },
    {
      "affiliations": [
        "Leeds Teaching Hospitals NHS Trust, Leeds, UK"
      ],
      "name": "Cheryl Stopford"
    },
    {
      "affiliations": [
        "Department of Paediatrics, University of Cambridge, Cambridge, UK"
      ],
      "name": "Heather Hanson Pierce"
    },
    {
      "affiliations": [
        "Leeds Teaching Hospitals NHS Trust, Leeds, UK"
      ],
      "name": "D Holliday"
    }
  ],
  "title": "Putting the patient at the centre: a call for research involvement of nurses, midwives and allied health professionals working in genomics",
  "uid": "9e7e9e5a-a4c4-567b-8ff3-8770d521be9d"
}