{
  "abstract": "Objective To develop an evidence-based reference model defining the exact boundaries of the missions and activities of the hospital-based cancer care coordination nurses, to clarify their roles and standardise practices for impact evaluation.Methods and analysis Design: A multiphase, mixed-methods modelling study was conducted. First, we collected qualitative and quantitative data on cancer coordination nursing practices through a multicentre cross-sectional study. Mixed data were mapped to a previously developed reference framework to derive the reference model. Setting: 10 French hospitals, varying in size and status, over 20 months (2018–2019). Participants: Thirty-six hospital-based cancer coordination nurses, 162 patients, 142 caregivers and 352 healthcare professionals from both hospital and primary care settings. Main outcome measures: Qualitative data on roles, activities and experiences were collected through observations, interviews and focus groups. Quantitative data on role perceptions and organisational context were gathered using standardised questionnaires assessing support, commitment, role conflict, patient quality of life, precariousness and caregiver burden.Results We identified core missions such as active listening, clinical needs assessment and internal coordination, but also differences leading to a nurse typology into three groups: ‘complex pathway coordinators’, ‘treatment specialists’ and ‘polyvalent nurses’. Only ‘complex pathway coordinators’, fully aligned with the reference framework, performed complete care coordination and correspond to the reference model.Conclusion The modelling provides a foundation for standardising cancer care coordination practices, improving training and establishing a standard intervention for evaluating cancer care navigation which the authors are still calling for.Trial registration number NCT03350776.",
  "authors": [
    {
      "affiliations": [
        "Centre de coordination en cancérologie (3C), CHU de Bordeaux, Bordeaux, France",
        "Bordeaux Population Health, PHARes team, INSERM U1219, Bordeaux, France"
      ],
      "name": "Françoise Colombani"
    },
    {
      "affiliations": [
        "Centre de coordination en cancérologie (3C), CHU de Bordeaux, Bordeaux, France"
      ],
      "name": "Nicolas Calcagni"
    },
    {
      "affiliations": [
        "Bordeaux Population Health, PHARes team, INSERM U1219, Bordeaux, France",
        "ISPED, Bordeaux School of Public Health, Université de Bordeaux, Talence, Nouvelle-Aquitaine, France"
      ],
      "name": "Matthieu Sibé"
    },
    {
      "affiliations": [
        "Unité de soutien méthodologique à la recherche, Pôle de Santé Publique, Service d’Information Médicale, CHU de Bordeaux, Bordeaux, France"
      ],
      "name": "Marion Kret"
    },
    {
      "affiliations": [
        "LabPsy UR4139, Université de Bordeaux, Bordeaux, Nouvelle-Aquitaine, France"
      ],
      "name": "Hugo Fournier"
    },
    {
      "affiliations": [
        "Service d’oncologie médicale, Pôle de Cancérologie, CHU de Bordeaux, Bordeaux, France"
      ],
      "name": "Alain Ravaud"
    },
    {
      "affiliations": [
        "LabPsy UR4139, University of Bordeaux, Bordeaux, Aquitaine, France"
      ],
      "name": "Bruno Quintard"
    },
    {
      "affiliations": [
        "Bordeaux Population Health, PHARes team, INSERM U1219, Bordeaux, France",
        "INSERM U1219, ISPED, University of Bordeaux, Talence, Aquitaine, France",
        "Unité méthodes évaluation en santé (UMES), Pôle de Santé Publique, Service d’Information Médicale, CHU de Bordeaux, Bordeaux, France"
      ],
      "name": "Florence Saillour-Glenisson"
    },
    {
      "affiliations": [],
      "name": "EPOCK research project"
    }
  ],
  "title": "Evidence-based modelling and taxonomy of hospital-based cancer care coordination nurses’ roles and boundaries: an iterative multiphase convergent mixed study",
  "uid": "a98089b6-1c5b-5080-bcd2-14593940f4dd"
}