{
  "abstract": "Introduction Community values and preferences should inform risk communication during pregnancy in the context of an epidemic of an emerging pathogen, given the high levels of uncertainty in the diagnosis and the probability of an adverse outcome.Methods We conducted a multicountry qualitative study with 98 women from 7 sites in Brazil, Colombia and Puerto Rico to understand their preferences for learning about Zika virus test results amid high levels of uncertainty in diagnostic testing and related outcomes. We used thematic analysis with a combined deductive and inductive approach to analyse findings from the in-depth interviews.Findings Across sites and time periods, women wanted to learn about their test results, the risk to their pregnancy or infant and the related uncertainty as early as possible. They wanted to separate risk communication from decision-making around the following steps to give them time to consider the test results, related risks and available services.Conclusions Communication of the risk associated with an emerging pathogen suspected to affect pregnancy and developmental outcomes is a fraught issue. Public health authorities and healthcare providers should work closely together to understand families’ preferences for risk communication in the presence of uncertainty and develop a community-informed plan for risk communication as early as possible during an epidemic of an emerging infectious disease.",
  "authors": [
    {
      "affiliations": [
        "El Centro Internacional de Entrenamiento e Investigaciones Médicas (CIDEIM), Bucaramanga, Colombia",
        "Facultad de Salud, Departamento de Salud Pública, Universidad Industrial de Santander, Bucaramanga, Colombia"
      ],
      "name": "María Consuelo Miranda Montoya"
    },
    {
      "affiliations": [
        "Facultad de Ciencias de la Salud, Universidad Autónoma de Bucaramanga, Bucaramanga, Colombia"
      ],
      "name": "Claudia Milena Hormiga Sánchez"
    },
    {
      "affiliations": [
        "Oswaldo Cruz Foundation (FIOCRUZ), Rio de Janeiro, Brazil"
      ],
      "name": "Ester Paiva Souto"
    },
    {
      "affiliations": [
        "University of Puerto Rico Medical Sciences Campus, Graduate School of Public Health, San Juan, Puerto Rico",
        "Hispanic Alliance for Clinical and Translational Research, San Juan, Puerto Rico"
      ],
      "name": "Edna Acosta Pérez"
    },
    {
      "affiliations": [
        "Fundacao Oswaldo Cruz (FIOCRUZ), Policy and Administration in Health, Rio de Janeiro, Brazil"
      ],
      "name": "Gustavo Matta"
    },
    {
      "affiliations": [
        "Fundação Getulio Vargas, Rio de Janeiro, Brazil"
      ],
      "name": "Juliana Silva Corrêa"
    },
    {
      "affiliations": [
        "Instituto Nacional de Salud, Research Division, Bogota, Colombia"
      ],
      "name": "Marcela Daza"
    },
    {
      "affiliations": [
        "Professor Joaquim Amorim Neto Research Institute (IPESQ), UNIFACISA University Center, Paraíba, Brazil"
      ],
      "name": "Gabriela Gama"
    },
    {
      "affiliations": [
        "Laboratory for studies on drugs, vulnerabilities and social markers (LED), Department of Public Health (NESC), Aggeu Magalhães Institute - Fiocruz Pernambuco, Recife, Brazil"
      ],
      "name": "Camila Pimentel"
    },
    {
      "affiliations": [
        "Dirección de Investigación en Salud Pública, Instituto Nacional de Salud, Bogota, Colombia"
      ],
      "name": "Marcela Mercado-Reyes"
    },
    {
      "affiliations": [
        "Facultad de Salud, Departamento de Salud Pública, Universidad Industrial de Santander, Bucaramanga, Colombia"
      ],
      "name": "Angelica María Amado Niño"
    },
    {
      "affiliations": [
        "ISGlobal, Hospital Clínic-Universitat de Barcelona, Barcelona, Spain"
      ],
      "name": "Elena Marbán-Castro"
    },
    {
      "affiliations": [
        "Heidelberger Institut für Global Health, Universitätsklinikum Heidelberg, Heidelberg, Germany"
      ],
      "name": "Luz Marina Leegstra"
    },
    {
      "affiliations": [
        "Rollins School of Public Health, Hubert Department of Global Health, Emory University, Atlanta, Georgia, USA"
      ],
      "name": "Olivia Manders"
    },
    {
      "affiliations": [
        "Postgraduate Program in Bioethics, Applied Ethics and Collective Health (ENSP-FIOCRUZ)",
        "Interdisciplinary Centre for Public Health Emergencies (NIESP-CEE-FIOCRUZ), Oswaldo Cruz Foundation, Rio de Janeiro, Brazil"
      ],
      "name": "Priscila Cardia Petra"
    },
    {
      "affiliations": [
        "Heidelberger Institut für Global Health, Universitätsklinikum Heidelberg, Heidelberg, Germany"
      ],
      "name": "Lauren Maxwell"
    }
  ],
  "title": "“It is not something you like to hear, but it is something you have to know”. Community preferences for risk communication during pregnancy in the context of an emerging pathogen: a multicountry qualitative study with women in three ZIKV endemic countries who were pregnant during and following ZIKV",
  "uid": "40785c37-7643-59da-ac85-36cb6f798a45"
}