{
  "abstract": "Introduction Paediatric cancer survivorship is an emerging priority in the current global health agenda. The models of long-term follow-up (LTFU) in Asia may vary widely based on differences in healthcare systems and resources. This study aims to characterise the models of care and current resources available for paediatric cancer survivors in Asian countries.Methods This multinational, cross-sectional study conducted from February to May 2024 recruited clinicians practising in an institution/centre in the United Nations geoscheme, using a combination of purposive and snowball sampling. They were identified through the 18th St Jude-Viva Forum in Singapore and local professional societies. Each invited institution nominated a representative to complete a structured questionnaire focusing on the institution’s characteristics of LTFU care, the availability of risk-based screening tests according to the Children’s Oncology Long-term Follow-up Guideline and the availability of recommended services in an LTFU programme.Results The survey included participants representing 87 paediatric oncology units/institutions from 28 Asian countries/regions (response rate 68%). Out of the 87 units/institutions, the majority of institutions provided LTFU care through specialised LTFU clinics (44%) or oncologist-led clinics (45%). Significantly more institutions with specialised LTFU clinics offered assessments by multidisciplinary professionals, for example, motor (74% vs 44%, p=0.008) and speech/language (66% vs 36%, p=0.008) assessments, than those adopting other models of care. Institutions with LTFU clinics were more likely to provide health risk counselling (p=0.045), fertility preservation (p=0.018), pain clinics (p=0.008) and nutrition programmes (p=0.018). Institutions adhering to a specific LTFU guideline were more likely to provide comprehensive visual assessment (p=0.012) and health risk counselling (p<0.001). There were no differences between the economies in providing basic late-effects screening tests.Conclusion Our findings demonstrated that establishing an LTFU clinic according to evidence-based guidelines can facilitate more comprehensive late-effects screening and support for survivors. Regional collaborations should aim to develop resources-stratified recommendations and policies for coordinated and integrated LTFU care in Asian countries.",
  "authors": [
    {
      "affiliations": [
        "Department of Paediatrics and Adolescent Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China"
      ],
      "name": "Winnie Wan Yee Tso"
    },
    {
      "affiliations": [
        "Department of Oncology, St Jude Children’s Research Hospital, Memphis, Tennessee, USA"
      ],
      "name": "Melissa M Hudson"
    },
    {
      "affiliations": [
        "Max Super Speciality Hospital, New Delhi, India",
        "Cankids NGO, New Delhi, India"
      ],
      "name": "Ramandeep Singh Arora"
    },
    {
      "affiliations": [
        "Division of Neurosurgery, Philippine General Hospital, Manila, Philippines"
      ],
      "name": "Ronnie E Baticulon"
    },
    {
      "affiliations": [
        "Department of Hematology and Oncology, Shanghai Children’s Medical Center Affiliated to Shanghai Jiaotong University School of Medicine, Shanghai, Shanghai, China"
      ],
      "name": "Jiaoyang Cai"
    },
    {
      "affiliations": [
        "Division of Pediatric Hematology and Oncology, Koo Foundation Sun Yat-Sen Cancer Center, Taipei City, Taipei City, Taiwan"
      ],
      "name": "Bow-wen Chen"
    },
    {
      "affiliations": [
        "Department of Pediatrics and Hematology-Oncology, Bombay Hospital Institute of Medical Sciences, Mumbai, MH, India"
      ],
      "name": "Rashmi Dalvi"
    },
    {
      "affiliations": [
        "National Cancer Institute, Maharagama, Sri Lanka"
      ],
      "name": "Sanjeeva Gunasekera"
    },
    {
      "affiliations": [
        "Suzuka University of Medical Science, Suzuka, Mie Prefecture, Japan"
      ],
      "name": "Hiroki Hori"
    },
    {
      "affiliations": [
        "Department of Paediatrics, King Faisal Specialist Hospital and Research Center, Al Madinah Al Munawarah, Saudi Arabia"
      ],
      "name": "Muhammad Saghir Khan"
    },
    {
      "affiliations": [
        "Department of Radiation Oncology, Research Institute and Hospital, National Cancer Center Korea, Goyang, Korea (the Republic of)"
      ],
      "name": "Joo-Young Kim"
    },
    {
      "affiliations": [
        "Khoo Teck Puat—National University Children’s Medical Institute, Singapore"
      ],
      "name": "Shawn Hsien Ren Lee"
    },
    {
      "affiliations": [
        "Department of Paediatrics and Adolescent Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China"
      ],
      "name": "Lok Kan Leung"
    },
    {
      "affiliations": [
        "National Cancer Center, Calmette Hospital, Phnom Penh, Phnom Penh, Cambodia"
      ],
      "name": "Mora Mel"
    },
    {
      "affiliations": [
        "Department of Pediatrics, Kurume University School of Medicine, Kurume, Fukuoka Prefecture, Japan"
      ],
      "name": "Shuichi Ozono"
    },
    {
      "affiliations": [
        "Department of Medical Oncology (Pediatric Oncology Division), Cancer Institute-WIA, Chennai, India"
      ],
      "name": "Venkatraman Radhakrishnan"
    },
    {
      "affiliations": [
        "Kanti Children’s Hospital, Kathmandu, Nepal"
      ],
      "name": "Sudhir Sapkota"
    },
    {
      "affiliations": [
        "Department of Paediatrics, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China",
        "Hong Kong Hub of Paediatric Excellence, The Chinese University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China"
      ],
      "name": "Chi Kong Li"
    },
    {
      "affiliations": [
        "Department of Paediatrics and Adolescent Medicine, Li Ka Shing Faculty of Medicine, The University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China"
      ],
      "name": "Anthony Pak-yin Liu"
    },
    {
      "affiliations": [
        "Hong Kong Hub of Paediatric Excellence, The Chinese University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China",
        "School of Pharmacy, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong, Hong Kong Special Administrative Region of China"
      ],
      "name": "Yin Ting Cheung"
    }
  ],
  "title": "Mapping of current resources and models of care for paediatric cancer survivors in Asia: a multinational survey",
  "uid": "ddd39802-f18b-5164-9f46-d55817e02dc1"
}